Went to one doctor today, and he raised my Neurontin dosage from 900mg daily, to 1800mg daily. Is this typically? That just seems like a WHOLE lot of milligrams. Can anyone out there, taking Neurontin, fill me in on this one. I don't even really know what the Neurontin is supposedly doing within my body in the first place...HELP!

http://health.yahoo.com/nervous-medi...-d03182a1.html

http://www.pfizer.com/files/products/uspi_neurontin.pdf

Hi Heather,
How are you and your baby? I really hope that your pain is going down a bit.
Take care and if you need anything just ask, I am happy to help.
Thanks

Want to Babysit...j/k

The pain and the baby have been really tough lately...She doesn't want to sleep and I do...So, I have to keep going and GOD allows me to. I know that HE will never give me anything that I cannot handle, right?!My flare-ups are getting worse because my last block has worn off ond my hormone levels from birth are returning...I am in the process of moving back to Cali and won't see a Dr. till the 31st. So, I have to "grin and bear it"!

How are you, hun?! Hope your pain is well! Thanks for caring Ali!


Heather

I've known a few people who were on doses of 3600-4800mg of neurontin,so I guess your dose seems rather low compared to that! LOL So you still have much room to grow dosage wise anyway.

Hugs,

Karen

Those friends, those buddies of yours, taking thos Neurontin doses that you mentioned, are they dead? Do they have a pulse? Do they walk like they are drunk? Just kidding, but, man, those ARE really high doses that you mentioned. Those that you know, that take Neurontin at that dosage, are they people who are also diagnosed with RSD?

Hi Heather,
I am so sorry about what you are going through ((hugs)) Lets hope your original doctor in Cali can help you.
I am not doing so good, the pain is bad
I have however heard from Great Ormond Street Hospital, London (UK) I am going to see a doctor there on the 25th March. He will have a look at me and if he feels there is something he can do he will try and help (from what we have been told by my PM doctor, he is really good) There is also a 3 weeks intense physiotherapy/treatment course that I could go on.
A tutor came to see me today about home tuitoring. He is really nice and helpful and I start home schooling on Tuesday. So that is something positive.
I am trying to get out with my friends more but it is hard because of the pain. I went out with one of my friends today, I had a good time but man I was tiered when she went home lol.
If there is anything I can do just ask.
Love
Alison

The nuerontin is an anti sezuire medication. It also happens to help with pain. Particularily nerve pain. I have severe TOS and mild RSD, and I am on 1800 mgs too.

Do you feel that neurontin has been beneficial in your treatment? I had been taking 900mg since October. I just got it raised to 1800mg two days ago. I just wondered if you found it helpful or noticed a difference that it may or may not make.

I take 3600 mg daily @ 900mg increments 4 x's a day. Yes it helps with the burning pain, but I didn't realize it helped until I was on a high enough dose of narcotics that I could tell it helped. At one time I was on 4800 mgs a day. I don't seem to be suffering from any type side effects, but then I have been on this med since 2003. RSD is in both of my feet.

DebbyV