Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-24-2008, 10:56 PM #1
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Question hyperbaric or HBOT treatments?

HI everyone!

Hope you are experiencing the best possible days you can!

I have a question, has anyone ever had or even heard of using a hyperbaric chamber to treat RSD? I have some info that it is being used in Europe with good success. Since I am so sensitive to pain meds, I have now been taken off of all of them and the pain is unbearable! I willing to try most anything.

If you have any info...let me know.

Thanks a lot!
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Old 01-25-2008, 07:49 AM #2
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Hi there,
I am starting HBOT in February, I will let you know how it goes.
These websites might help you in the mean time though:
http://www.rsdalert.co.uk/treatments/HBOT.htm
http://www.hbot.com/frontpage.htm
http://en.wikipedia.org/wiki/Hyperbaric_oxygen_therapy
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Old 01-25-2008, 09:06 AM #3
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Hi there,

Yes I have had many months of HBOT and would love to answer any questions you may have.
Love Tayla
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Old 01-25-2008, 09:21 AM #4
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Can you let us know how often you had the dives and the difference it has made to your pain levels and mobility
I'd be really interested to know how you went on before I start with HBO myself
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Old 01-28-2008, 12:27 AM #5
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Default Yes, please give us HBOT info & advice

Quote:
Originally Posted by tayla4me View Post
Hi there,

Yes I have had many months of HBOT and would love to answer any questions you may have.
Love Tayla
Tayla, I, doo would love to know if you have felt or seen a difference. I am trying to get this researched so I can present to my PM doc for consideration. Any advice or article links, etc. would be appreciated.
Hope it is working wonders for you...
Feel well!
MrsHippie
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Old 01-28-2008, 12:28 AM #6
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Default Yes, please give us HBOT info & advice

Quote:
Originally Posted by tayla4me View Post
Hi there,

Yes I have had many months of HBOT and would love to answer any questions you may have.
Love Tayla
Tayla, I, too would love to know if you have felt or seen a difference. I am trying to get this researched so I can present to my PM doc for consideration. Any advice or article links, etc. would be appreciated.
Hope it is working wonders for you...
Feel well! Breathe deeply!
MrsHippie
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Old 01-28-2008, 12:32 AM #7
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Default Thanks for the links!

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Originally Posted by ali12 View Post
Hi there,
I am starting HBOT in February, I will let you know how it goes.
These websites might help you in the mean time though:
http://www.rsdalert.co.uk/treatments/HBOT.htm
http://www.hbot.com/frontpage.htm
http://en.wikipedia.org/wiki/Hyperbaric_oxygen_therapy
Ali, I will wish the best for you with your treatments and hope you will keep me informed as they go on. Where are you having this done?
I will keep you in my prayers that positive results will come out of this!
Breathe Deeply!
MrsHippie
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Old 01-29-2008, 10:57 AM #8
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Heart Mrsshippie,

Hi there,
Of course I will let you know how the HBO goes. I live in the UK (England) so I am having the HBOT done there. I have to go every day for a month to get the best possible results and it is £10 per dive.
If you need anything else please let me know
Many thanks
Alison
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Old 02-14-2008, 12:18 PM #9
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Hi All,
I am new to this site. I had RSD resulted from IV trauma 8 months ago. I had 30 sessions of hyperbaric therapy. It reduced by pain level by about 40 to 50 %. However, it appears losing it effect a month gradually after i stop the treatment. It is very expensive.
Take care and hope the hyperbaric will work for you!
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Old 02-14-2008, 08:24 PM #10
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Hello,

I have had months of "dives" but initially they were to heal some wounds from my accident that caused my RSD/CRPS.
I believe it is like many treatments and if it is commenced in a timely manner close to diagnosis, there is more chance of a good result.
It did help the wounds somewhat and reduced pain over the time I had it but unfortunately it was years into my disease process before it was commenced so there was not a lasting affect for my pain.
It is covered by our medicare system here so there is no cost involved at all if you meet the criteria.
I would strongly recommend it as a treatment as it makes sense that high oxygen levels will improve the blood supplied to those areas which are affected and reduce the pain from poor blood supply caused by vasoconstriction caused by sympathetic dysfunction.
The actual treatment is not difficult but often boring as you sit for the 2 hours each dive.
It is important to be able to equalise your ears as when flying as you can have ear problems if you are unable to do so.
Like most things there are some possible side effects but these are not likely to occur if you are being treated at a HYPERBARIC CENTRE staffed by registered and experienced staff.
Any other questions please just ask.
Tayla
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