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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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I think his diets makes alot of sense myself.. the four F's for example loaded down with antioxadents and omega3 fatty acids etc.
The 5 C's I am not so good at following lol I try but I am a slave to my ma's cooked puddings, however he does say to limit excess amounts of the 5 C's not all, and I do know that some of the 5 C's contribute to my headaches as well. I believe his theory is explained in the link below, and I do believe it is all a good read, just weed out what you are not inclined to believe (I do always) and get what you want out of the rest same as with anything you read. http://books.google.com/books?id=-j8...Aw3Y#PPA131,M1 I tend to think that this study coffiebean is probibly an antioxadent study to follow up the Vitimin C study that showed it could stop RSD from happening in a large percent of people with radial wrist breaks. |
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"Thanks for this!" says: | nopainever (01-26-2008) |
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#2 | ||
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I'll elaborate a little on my earlier post.
At one point I seemed to be extremely sensitive to sodium nitrite. This is a deadly poison even in tiny quantities but even smaller quantities are used to keep meat red. A single piece of processed meat would send me into a minor flare and bacon or corned beef would be a couple days of agony. It went away after about a year and now I eat up to moderate quantities (two medium servings per day). Doctors have continually suggested quitting caffeine. So every six months or so I'd quit to see if it helped anything; it didn't. I love coffee and the control it gives me so I'd start drinking it again (4 cups/ day). The last time I tried to quit, I couldn't. I get a little panic attack about an hour after coffee time and it won't go away until I have coffee. Cod liver oil is great for my arthritis now but makes my ears itch so horribly it's incredible. Chocolate and sugar aggravate it but this wasn't apparent a year or two ago. Ghinko Biloba has been a big help as an analgesic right from the beginning. Salt made things worse but then I cut back on salt too much and that was worse yet. For a while I had to try to keep my salt intake in a very narrow but variable range. Now the range is a little higher and much wider and easy to hit. Dairy was a no-no for a year once. Most of these things seem to be stabilizing a little now after about ten years of this. Really I'm back to about the way things were with diet before this started. I do eat much more carefully now and try to watch for patterns. Balance is good and fresh food is good. It costs a lot more to eat now but it's healthier. I avoid processed foods and especially the very heavily processed foods but this is mainly because I don't trust them and hope it will keep me on a more even keel. I've added metamusil recently which seems to be a boon for the diverticulitis. I've tried it in the past with little effect though. I chew my food more thoroughly but this also is mostly for the diverticulosis. I used to eat just a couple meals per day and have found three meals and a sizable snack work better. For some reason my body has never much cared for food in the morning so I don't eat early. My diet is only about 1900/ 2000 calories now and it has been close to 5000 in the past. I use more spices now but nothing very heavily. I've grown pretty fond of cumin though. I drink a lot more juice now and with meals. I experience stress in my guts and if there is one thing RSD is good for it's stress so digestion problems were severe for me especially the first five or six years. It's still a big problem but not quite like it has been. |
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#3 | ||
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I have been seeing a homeopathic doctor for my RSD and it has changed EVERYTHING!!!!!!!!
I haven't been doing it long but have already noticed a considerable difference. I recently met a women who was full body and through homeopathy she considers herself 40 % in remission .She is off all meds but neurontin. I decided I had nothing to lose as Western medicine was getting me nowhere so I was going to give it a shot. My best pain management tools were already of the alternative variety -meditation especially and acupuncture . He treats me specifically so I can't transfer the treatment but one of the main things about all of us that can be addressed is inflammation. He believes that nothing in me can be healed if he does not address the underlying issue of inflammation in my body . That includes an anti inflammation diet .-I think inflammation is a universal theme with this condition.For this reason I will post my dietary guidelines Take from them what you will ![]() They were part of my 4 hour initial treatment .Now how many western docs do that? If these can help someone- anyone- you - use them - then pass them around- spread the love - isn't that what this is all about??? ![]() obviously you cannot follow them all to a T -or can you ![]() I am taking this all very seriously as I want to get well ! These cost me big ![]() NO • cooking in aluminum pots, meat, spicy foods, fried foods, fatty foods, rich foods, salty foods, coffee, caffeine, sweet foods and sugar, cow’s milk and other dairy products, white bread, refined foods, processed foods. Eat Fresh organic only raw or steamed vegetables. Fresh organic fruits. Fish: Salmon, Sardines, No big fish (too many heavy metals), Temepe (soy product). Nuts and seeds, avocado and coconut for fats. Beans, legumes and brown rice. Nuts and seeds. Very small to no meat or dairy products, eggs are OK. No breads, cakes, pastries, pasta… anything with gluten in it. Lots of fiber rich foods. Soups and broths are good esp. Miso. ANTI-INFLAMMATORY DIET EAT ONLY THE FOLLOWING ORGANICALLY GROWN FOODS Steamed vegetables: • The primary reason for using steamed vegetables is that steaming improves the utilization or the availability of the food substances and it reduces the irritating residue in the gut, allowing it to restore itself. • Eat a variety of any and all vegetables that you tolerate. • Do not use aluminum cookware or a microwave. Grains: • Eat one to two cups of cooked grains per day of those you tolerate. • Allowed grains are: millet, basmati or brown rice, quinoa, and amaranth. • Other grain foods that may be eaten are rice crisps and wasa crackers Fish: • Deep sea fish is preferred - no shellfish. • The fish should be poached, baked, steamed, or broiled. Chicken: • Eat only white meat and do not eat the skin. • The chicken should be baked, broiled, or steamed. Fruit: • Eat 1 or 2 pieces of practically any fruit except citrus. Sweeteners: • Very small amounts of maple syrup, rice syrup, barley syrup and honey may be used. • Absolutely no sugar, Nutrasweet, or any other sweetener is allowed. Butter/Oils: • For butter, mix together 1 pound of butter and 1 cup of extra virgin olive oil (from a new dark jar). Whip at room temperature and store in the refrigerator. Provides the benefits and taste of butter and essential fatty acids. • Use extra virgin olive oil for all other situations requiring oil. Herbal teas and good water to drink: • Drink 8 to 10 glasses of filtered or reverse-osmosis filtered water every day. • Drink 2 to 4 cups of herbal tea. Herbal teas are best taken in the evening, sipped slowly. For the time-being, avoid the following foods: • Milk • Cheese • Eggs • Citrus except for lemon • Breads • White flour • Fried food • Peanuts and peanut butter • Tea • Coffee • Alcohol • Meat - red meat and especially pork and pork products • Sugar, Nutrasweet, and all sweeteners (except maple syrup and honey) This strict a diet is meant for the first 21 days to get a handle on the inflammation - I think I can loosen up a little bit afterwards ![]() I am good. I have a huge protein shake with cocounut oils and protein and makai and other essential oils and anti oxidants and other calories and good stuff flax seed - pure honeys etc.. I need to gain weight ![]() Good Luck Peace GnP |
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#4 | |||
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I knew that there had to be some "theory" to the diet. It wouldn't make sense to the saying "you Are What You Eat" right?
I already follow this farely well. I see where I can tighten my edges now! Good Luck and Thanks again! ![]() Heather
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. "We Will Conquer This Demon They Refer to As, RSD!" . . |
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#5 | |||
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Thanx for the diet info! I'm definitely going to try it.
I'm going to beat this thing! Silly question...Sushi may be out of the question as I suspect it has some gluten and it's not cooked...right? (Don't go breaking my heart) You brought up the Miso soup and got me all excited! lol Should I still take the Grape Seed Extract and continue with the Epson Salt baths? Or is the only plan for organic meals and acupuncture only. I'm not an expert on Western Medicine yet, however I'd love to learn more. Thanx again ![]()
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myspace.com/asiliveandbreathe |
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#6 | |||
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In Remembrance
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Hi Sandra,
I replied on this thread because it is my self-appointed duty to make sure everyone knows that Hoosh is a quack who charged his patients thousands of dollars before he would see them, and who never helped anyone. His “Puzzles” are arranged so that no one will ever know exactly what he said, but some of them are so stupid they should be read by everyone: Like his description of “fight or flight”; in which he says “flight” means rest. Anyway, the guy was convicted of Medicare fraud; he did have his DEA license revoked, and he made lots of money while failing to help anyone with RSD. If someone wants to read his “Puzzles” anyway; enjoy. I do think we should listen to our bodies, they’ll tell us if a food makes our pain worse. We shouldn’t avoid life’s simple pleasures just because some expert tells us it will make us feel better; especially when that expert is Hoosh. Life with RSD sucks, and if eating a Turtle gives me a moment of pleasure (and it does), I’ll take it. If a Turtle ever nakes my pain worse, I'll give the rest to my grandkids. (Sending my grandkids home with a sugar high is my way of getting even with my kids)...Vic
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The great end of life is not knowldege but action. T. H. Huxley When in doubt, ask: What would Jimmy Buffett do? email: : . Last edited by Vicc; 01-27-2008 at 05:18 AM. |
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#7 | ||
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I am so sorry sushi is out
![]() Now with acupuncture you have to be extremely careful - some will try to treat you for neuropathy's which involves hitting the areas which hurt- NO GOOD . The most effective treatment is when they work on calming the central nervous system( at least for me) which involves points in the back ( and the delicious ones in the head which put you into a delightful trance ) so please make sure your acupuncturist is well qualified - or hold off on this for the time being . I would spend my money on a holistic doctor -more bang for the buck- again do the research . My return on my investment has been beyond amazing in such a short period of time .In fact I don't want to jinx anything but I have never been this hopeful of a bright and excellent future. ![]() ![]() ![]() Now of course you can continue with your grape seed extract . However in my treatments I have received antioxidants in amounts that would and do put GSE to shame and then some (kid stuff) ![]() ![]() ![]() And most are in their purest and most natural form . In France Homeopathy is considered medicine and is the first line of defense-no PCP's -just your local homeopath ![]() These homeopathic medicines and tinctures ( and they are very strong powerful stuff indeed ) have been given up on long ago by the FDA as there is no money in their use and sales as no big pharmaceutical companies are involved.. They are nontoxic to the body - cheaper than the meds the doctors give us and they work at the root of the problem NOT just to mask symptoms . What more could you want ?? Peace and Good Luck GnP PS Epsom salts baths are always an IN ![]() If it makes you feel good and is not toxic it is always a good thing ![]() Last edited by Goodn'Plenty; 01-27-2008 at 08:54 AM. |
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"Thanks for this!" says: | Desi (01-30-2008), GreyHoundLover (01-28-2008) |
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#8 | ||
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Junior Member
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Thanks for the info GnP--
I am going to show it to my daughter who has been relatively pain free for a couple of months until this week when she tweaked her knee (not a known RSD point for her--yet) Her foot however, not in pain sure looks like RSD in full mode--it is weird and I guess it is just building in her. Anyway, the inflammation in her knee is what we need to calm down so the pain will stop. A question about this diet, if I purchase gluten free products, will that open some options for her? She is a good eater but is very thin and needs to keep calories. Also while being a good eater, fish isn't for her. I think I can make this work but I feel a bit rushed in it as it is so situational. I agree with Vicc that life is to short to limit the good things, but right now, walking and school are the good things in her life. She just completed her first semester of high school, first full semester in over three years and came out ranked #1 in her class and on the highest honor roll. Okay--didn't mean to brag but I am so proud of her and all that she has accomplished. The best part is that for the first time in three years she has friends. Thanks for the info-
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RSDmom . |
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#9 | |||
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Magnate
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I think diet is important. If we can keep from getting any other disease to go with RSDS then we need to if that's all a diet does. A person doesn't need diabetes, GERD, Ulcers, and other medical problems by eating too much of the wrong thing.
I do believe that it could make the pain worse too. If you have RSD internally then the wrong ingredients of certain foods could set the pain off. I deal with bladder pain and pelvic pain. I have learned that I can't do tea, oranges, things with acid in them. I think staying on the right diet will keep you from getting more sick in other ways and making the RSD worse. As far as Dr. Hooshmand. I have his book. I bought it about 5 years ago for me and one for my Dr. It was the best thing I could have done. Everything in there might not be up to date or right but if you are able to use some of his training and knowledge to help yourselves then that's a good thing. We take what we learn from each person we read from or any of you and use what we feel we can. As far as herbs and vitamins, a person should always check with their Dr. to see if they are ok to take with the meds you are taking. Some donot. Have a good day. Ada |
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"Thanks for this!" says: | nopainever (01-27-2008) |
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#10 | |||
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Member
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Quote:
![]() Now, this has got to be one of the best posts on all this "stuff" we are talking about! I'll give you a A+ for this post!! ![]() ![]() ![]() ![]()
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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