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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Magnate
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Welcome to the board.
You might ask your Dr. to give you a script for Lidocaine patches. They work pretty good. You could put one on the areas that hurt. You can use 3 of them 12 hours on and 12 off. I think they help a lot. I have had the ulner nerve surgery, along with the Thoracic outlet, 2 rotator cuff surgeries and just had surgery to release a nerve on the middle finger of my right hand. All were done on my right arm and hand. I still have others to go but we wait until I can't deal with them no more. My left side I have had one surgery under my arm. The RSD was brought out with the TOS surgery but due to having blocks the other 5 times, it didn't spread. I have been lucky in that way. I would ask for a block before any surgery that you might have to have to keep the RSD from spreading. I'm sorry that you are in so much pain. I do know what it's like. I can remember when I first started out how bad it was. I became suicidal over it. Please take care and I hope you start seeing some better days. Ada |
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#2 | |||
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Junior Member
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You have been through a lot too, way too much. I think those nerve blocks probably helped, you're right because I don't think it's spread luckily. I had a paralyzed right side though and a droopy eye for a while and a runny nose with an arm that I couldn't move on it's own. I had to pick it up with my other arm for a while to move it around. Those lidocaine patches sound really good, thanks for that suggestion. I no longer go to that pain management clinic, but I will try to ask another doctor for those. I remember wearing some pain patches too for a while, they stuck to the skin, I wonder if those are the same things. They helped a lot and made the skin numb which was nice. The hard part was peeling them off, that hurt. I'm sorry that you are also dealing with so much pain. My elbow hurts so bad, where the major surgery was on that ulnar nerve as I type this and the arm looks crooked. I was thinking of a pain pump also. Well thanks again and I hope that you also find some extended relief from this nightmare of RSD. You all made me feel less alone with this situation.
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#3 | ||
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Member
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So sorry for your pain, I use a gel you need a script from custom meds now called the Snyder Center for Pain Pharmacology. It is fantastic. You dont have to have the pain of pulling the lidocaine patch off- I do love those thou too. you doctor will need to call the pharmacist there, Dr. Steve is how everyone knows him, and he will prepare a mixture for your specific type of pain. I have now been getting this gel script for over 3.5 years. I could not live with out it. Ithink it would be particuarly helpful for under your arm. Make sure the pharmacist is told that your injury is there as he will make an non sticky mixture of meds. Sorry you are suffering.CZ
Pharmacy is listed it is in Inverness, florida. private message me if you physican needs the number. |
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