Sarah:
I'm a new member but not new to many issues you've described. I've had RSD problems/complications for over 15 years, and like you, many times I feel frightened too.
Sounds like you're mostly very positive and a fighter but desperate for help. Been there too--about every other day
I do not have the bladder complication. Sorry. Wish I could make that connection, however, I can connect with the viscera RSD/CRPS link.
I am blind (legally though can see color/light but not discernable) in one eye. The RSD is mimicking glaucoma in one eye but they are sure its not glaucoma--how weired is that?
I now have it impacting my heart-like a heart attack and I have the same problems in my arms that you've described. I have other issues but the leg pain, lack of sleep, migraines etc all part of the package.
What I have that helps me that you might want to consider is a Service Dog. Not a seeing eye dog (that symptom developed after I had him-of course) but a service dog that provides many benefits for me.
My spinal issues are acute and also due to problems w/feet I have problems with both mobility & stability as well as stamina (break out in sweat as my body is taxed beyond endurance). Been known to fall but mostly need added help w/slopes/steps, getting up & down from seated position, plus he keeps me walking and keeps my blood pressure down which spikes w/my pain. He keeps my hands moving as they want to turn into frozen claws. I could go on forever about the benefits I've received through my service dog. You may want to look into options if a dog would work in your life.
The viscera connection in RSD as a diagnosis is fairly new to me though sure its been there for a long time--just not identified even though anymore almost everything seems triggered by RSD. I have holes in my bones caused by RSD too plus other similar & dissimilar conditions (I won't bother you with my sad tale).
Don't want to make this a complaint fest but want you to know you are NOT alone. For one thing, many RSD patients don't use the PC much, plus its just a rare condition, not understood by many and therefore not easy for those you know to understand what you are coping with each day.
You did not mention family. Don't believe I'd be here today w/o my husband & family and my faith. They sustain me each day though that is not to say I don't hit bottom--frequently but I remind myself that you have to hit bottom to be able to push off the bottom of the pool to get some air!
I've recently been undergoing trial therapy with cold laser treatment. Too soon to know how affective it will be but I have reduced swelling (increasing range & freedom of motion) normal color (but purpling returns) and most significant for me at this point is that my calves/feet have increased temperature -- up to 6 degrees! I've lost that terrible iciness for now.
I will continue to pursue this through the help of a wonderful doctor but she tells me there is a clinic in Minnesota that uses the cold laser therapy for RSD patients w/great success. Don't know much about that but could help you identify sources in your area if you want to investigate value.
Since you support w/natural medicines etc, you may want to see if something that works for me helps you too:
I have a weird & rare response to BARLEY. Not an allergy but my body reactes to barley by causing me to sleep. Now I take form of barley before bedtime and I sleep soundly until about 3 am. I've taken all kinds of sleep meds w/their yucky side affects and nothing worked so well.
I've been told this is a rare reaction but may be worth a try. I learned that initially I could not tell a difference but with daily diet I was asleep.
I've been having a bowl of GrapeNuts microwaved with milk but am going to test boiling barley to make my own barley water- should work as well if not better.
I know the barley thing is odd but then again, everything about RSD is odd in our bodies so maybe you will share similar results.
Whatever the case, I hope you have found some improvement and relief.
Though it seems to progress in an awful way, I'm hopeful you'll find help and comfort.
One thing I do NOT do and that is use heat. I use cold packs for my pain though heat is more sooothing. I've learned that the cold packs reduce the pain & swelling and stabilize my condition the following day where heat seems to feel good at the time but cause greater problems the next day. If you try cold packs make sure they are not too cold or on too long.

Best of luck!