Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-10-2008, 12:58 PM #1
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Cool late welcome

Hello Kitty
Welcome to NT
I would like to sugest that you start taking some antioxadents right away, grape seed extract (GSE) or Vitimin C, and alot of antioxadent food and drinks.
They have recently found in clinical trials that Vitimin C can stop CRPS from happening in alot of cases after a break. It may help you hugely being so early diagnosed and it can't hurt to try.

hugs
Sandra

(talk to your doctor about it)
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Old 02-10-2008, 11:49 PM #2
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I've had good effect with ghinko biloba but it's said this stuff is pretty strong.

I also try not to make too many changes at once so I can tell which is causing what.
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Old 02-07-2008, 11:48 PM #3
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Yes. And the more I read about it, the more I refused to accept it, which ultimately I had to work through with the help of a counselor. I actually think that once I got myself to accept it (8 months after two diagnoses), my anxiety decreased, which actually helped my RSD to improve, albeit ever so slightly. But ever so slightly is heaps better than not at all
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Old 02-08-2008, 01:17 AM #4
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Dear Stephanie and friends, Yes, I am kind of somewhere between still being depressed over the diagnosis and acceptance. For one, when I was told by a orthopedic specialist, I didn't have a clue what he was talking about. He had seen me for 2 minutes, (I had flown across the country) after going from Dr. to Dr. for 4 years. After, I had testing, he confirmed it and gave me a stack of papers to read. I started physical therapy and flew back home. Continued phy. therapy, but needed more help mentally. All the life changes and losses was just to much for me. My phychiatrist is a wonderful person, also a neurologist, and pharmachologist. So he has me on tract with very little pain meds, really on just one, and was able to reduce that after changing to lyrica. But I still find myself in this dark hole, with my life and missing the energy I used to have. Discouraged about the weight gain. I'm on a program for exercise and a goal ofo 5 lbs a month, but it is so hard. My daughter is a huge encouragement. We used to play tennis together, hiking, snow ski, water ski, shop, trips together, I truly am grateful for the memories. She is visiting here now. I just want my life back they way it used to be. I've had other tragedies in my life and have recovered, like my mother dying at 46 from cancer-neglect of a DR. My father dying 8 years later of heart attack.. 3 yrs. counseling. I have many close friends, but as you know it's hard to understand only pick a couple to talk to. I have been also diagnosed with fibro. Swimming is the best exercise for everything. so that's my next goal, getting back into the pool. It's warm and only a few blocks away- health club. I know there is so much suffuring of other kinds and I really try to comort others in their pain. I have two very close friends that each had a child die. One a daughter 28 and other a son 33. My own Dr. lost a daughter suddenly at 23 I believe. Another thing I used to do was journal, and I think I'll start that up again. I forget your name, but I think Marla, how did you find out you have MS? Does that often come behind RSD and Fibro?
Thank you for listening. I hope something in my writing is of encouragement to someone. It really is hard to accept, especially when it is discovered after two year window. I've been thinking about trying to get more information in the medical communityl I have two neighbors that are Drs. One is a teaching professor and actually my Dr. teaches monthly in about 3 neighboring states. Just think if RSD was in each medical college at some point, so young Drs. could recognize the symptons! that would be wonderful, and one the lecturing circuits, if even a brief description and photos shown.'
Well, I wish you all comfort your friends and family and compassion from your Drs. and nurses. If we don't get it , just maybe, we should ask for it with a smile.

Soft hugs to all,

Loretta jewell
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Old 02-08-2008, 07:33 AM #5
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Hey,
Yes I didn't want to accept that I had RSD. The day I was diagnosed with RSD was the worst day of my life. I have finally come to terms with the diagnosis though.
Take care and I am sorry that you are dealing with this monster
Alison
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Old 02-08-2008, 10:40 AM #6
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Default Hi Kitty,

Welcome to the group. You will find a lot of support and help here.

I agree with Vicc. The sooner you can accept the diagnoses and learn about it the sooner you will be able to start tackling it with the right Drs. Anesteolgist or PM's for blocks to help put it in remission. Ask your Dr. about giving you blocks right away to see if it will put it into remission.

I was already messed up before RSD but I had trouble accepting the fact that I couldn't go back to work years after I became disabled.

I hope things work out for you and that you do get the help you need.

Ada
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Old 02-11-2008, 10:50 AM #7
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Thumbs up Denial.. shoot.. ya! LOL

Hi ya Stephanie!
Best believe your "boots' I was in denial. First of all, I DID NOT KNOW WHAT RSD was until I did much research and then found this wonderful board, no.. it is not advice to take at "heart".... only a Doc. can give ya the right meds, advice concerning blocks, physical therapy etc. hang in there, read as much as you can get you hands on!! Love, ~Desi
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Originally Posted by kittygato View Post
Did anyone else have issues with accepting the RSD diagnosis? I have heard it from two doctors and yet, I refuse to accept it. Did anyone else experience this same thing?
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