Not me.

It took a couple years before anyone even said what it was and more years before a diagnosis. By the time of the diagnosis anything would be preferable to limbo.

I'm so sorry. My doctors told me that I have RSD, but have not said anything about pain management. the only thing that has been mentioned is the MRI they are trying to schedule...

The insurance companies, apparently, are sticklers for excluding all other possibilities before allowing treatment for RSD. They would allow pain relief, but doctors, apparently, are loathe to prescribe pain relievers because of close governmental oversight. Many doctors, apparently, are not even allowed to write prescriptions for the few drugs that are usually effective for RSD.

Talk to the doc and see if he'll refer you to a pain specialist or anesthesiologist for pain relief in the interim. Doctors advise that this should be considered a last resort because pain relief will not help with the disease itself and can lead to serious side effects like addiction.

Don't take medical advice from me but it's also said that a properly managed pain program is very unlikely to lead to addiction. Talk to the doc but I would suggest not trying to get an Rx. Let him steer you to or from one.

This is a very sensitive area for doctors. Most pain relievers are ineffective. Ultracet or an equivalent works a little for some people and seems to be easier to get. It's addictive and should be treated with respect. Ask the doc.

This isn't a death sentence. It will change your life completely if you can't shake it but it won't necessarily destroy it. You have a good chance of a "cure" if it's caught in the first two years. Some people are cured by the very first block. Don't get your hopes too high but there are several techniques they can try to put this in remission. You have early diagnosis on your side.

It's even possible that the tests will turn up something more benign. Keep hoping.

If it does get cured you have to be very careful since it can come back easily.

Good luck.