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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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Hi Sue....I am so sorry you are having such horrible pain because of the weather. I hope you get some relief soon!!
Hi Ada, I hope you get some relief as well, this weather is causing havoc all over the place.....UGH!! You know the temp here was up in the 70's for 3 days and it wasn't a "hot" 70, there was a cool breeze along with it. I had sat out in the sun a couple days, but something really weird started happening to me that I had never experience before, so tell me if any of you have had this happen to you before..... It seemed like when I was getting warmer from the outside temp, I felt as if there were swords being stuck in me from head to toe and back up again. It was horrible!! Needless to say I can back in the house and turned on the fan to cool off and it went away. I really don't think I want that experience again, but I am curious if that has happened to anyone else.?? Have an Amazing day!! Love, Peace & Blessings, Marla |
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#2 | |||
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Magnate
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That is exactly the feelings I get in the heat. I feel like I am being stuck with needles all over or like I have electrical zaps going through me.
I cannot handle the heat at all. I just turned on a fan because it is hot here today. I am miserable when it is like this. I can't stand to get out into the sun. I use to like to lay out but can't do it now. I really don't know if this is part of the RSD or something else going on. My Dr. has PN in his feet and we talk about this all of the time. My whole body feels like his feet do. Burning pain, zaps, you name it. He opens a window for us when I go in there because he knows I can't handle heat even in the winter months. Ada |
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"Thanks for this!" says: | Marla (02-14-2008) |
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#3 | |||
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Member
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It has been warm enough earlier this week I was able to sit on my front porch & follow the sun across it to keep my achy breaky feetsies warm & read to my hearts content. Until the sun no longer hits the porch anyway *LOL* I have not been able to do that since last Oct. One of my favorite things to do. Today when we woke up it was way cloudy but didn't rain or anything. In fact the sun started shining again before noon. It was about 10 dgs cooler today. I have problems keeping my feet warm in weather like this, but it beats the super cold we had about a week ago. In fact we have damage to our car from a week ago Tuesday (yesterday). Enough our ins. has to fix it damn it, & we have to come up with $500 cash. Sheesh!!! We sure could have used it for something else.... A slab of ice & snow slid off the roof of our darn garage & hit our engine hood & dented it to heck. Grrrrrrrrrrrrrrrrrrr Always something tho huh?
So I am glad that weather is hopefully over for the season here, but it could still get cold & snow again. I have seen it snow clear up thru April before our here on the West Slope of the Sierra Mtn's. My pain is also wayyyyyyyyyyyy improved. And that is always helpful to me. Well I need to go see about a short snooze before TV this evening. Hang in there, peoples, hoping it gets better for all of you. DebbyV |
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#4 | |||
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Magnate
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They're calling for 4 to 8 inches of snow here tonight. We have not seen the whole ground around here for at least 2 months. I'm ok with it though, as I said, I can't handle the heat.
I went tonight and got Triggerpoint injections in my chest area and my left hip area. It's been hot today so I have been miserable. Marla, I am thinking that this thing we are dealing with where we have these problems with the heat is not part of RSD. I think it's something else going on. Ada |
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#5 | |||
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Junior Member
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Hi Ada,
It very well could be something else going on, but what makes you think that? Did you ask your doctor when you went to get your injections? How did that go for you by the way? Smoothly I hope. Well, we need to find out what the heck it is then, because you are right, it is horrible!!!! Talk with you soon. Love, Peace & Blessings, Marla |
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#6 | ||
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Junior Member
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#7 | |||
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Junior Member
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Hi Ada,
I am not sure if it is RSD related either. I have not experienced that the entire time being diagnosed with RSD, but recently it is difficult for me to determine what pain goes with what diagnosis....hahahaha, it's enough to make your head spin!!!! My meds have not changed since being diagnosed with Fibro, or MS, but with the Osteo they did put me on a Actonel, but that is the only change, well other than the added diagnosis'......hahahahaha I appreciate you letting me know that it is something that happens to others, so now I can figure out a way to make it go away...hahahaha. Of course I won't have to worry much about that for the next couple days around here.... Have an Amazing Day!! Love, Peace & Blessings, Marla |
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