Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-16-2006, 11:01 AM #1
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Default My "Feelings" are changing....Anyone with RSD in the hands/arms

can you help me out with this?

I'm in a bad way lately. I can't stand this darned weather! I'm in Michigan and we can't decide whether to be warm or cold. Are you worse with this weather, too? My hands are freaking KILLING ME and this "restless body" is driving me bonkers. Plus, I forgot to change my patch this morning, so I'm sur tehat's part of the restlss body (withdrawal, probably). I can't stand how my body feels righg now.

I think one of my muscles in my right hand is ging whacko. What does rsd do to the muscles and tendons, etc? There is one, in the palm of my hand...the fatty part of the palm by the thumb, that hurts like heck most of the time now. You can usually feel that muscle whn you are twisting a cap off a bottle - and when I do, it throws me thru the roof. I cannot use that muscle or it spasms really bad. Sometimes it will spasm just cuz it fees like it. I will press n it to try and get it to calm down, but it just starts bak up again...or the left hand will spasm cuz I'm using it to stp the spasm in my right.

And...my thumb and forefinger on my rightg hand are going kinda numb...but in weird way. Almost like numb and sensitiv at te same time. Does that make any sense? I can't type for squat (as you can tell) cuz when I use thoe two fingers I either can't feel the keys or it hurts to feel the keys. I'm feeling BOTH sensations...numbness AND sensitivity.

Can you sehd any light on my weirdness? Is this an advancement to another stage perhaps?

Hope you had a good weekend.

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Old 10-16-2006, 12:22 PM #2
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Default I have rsd in my left hand

and I am experiencing the hyper-sensitivity. I haven't had numbness feeling since a carpal tunnal surgery in 1997. My pain today, is burning like grabbing a hot muffler and I cannot stand even the slightest breeze. I would suggest you ask your doc about a trapped nerve in the wrist or just before the bend of your elbow. Warmth like a paraffin dip and wrap of towels really helped me then. I hope this helps a bit. I remember the two sensations being worse than just the burning that I have today.

Anyone else had carpal tunnal surgery?
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Old 10-16-2006, 12:53 PM #3
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Thanks Kathy...I'm SO AFRAID of any type of surgery though. That's what got me here in the FIRST place! I don't want anyone cutting me every again. I don't even want any more emgs. Aren't emg's dangerous to those of us with RSD?

Wouldn't a nerve entrapment be on only ONE side though? cuz this really is on both, it jus tonly happens "by itself" on the right. The left happens, too, but I have to actually DO SOEMTHIGN to make it happen...it doesn't come on by itself like the right does.
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Old 10-16-2006, 02:06 PM #4
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Default Hi Lisa

I had nerve entrapment on both hands following my car accident in 2000.

Piture it: Ford Ranger Pickup - Quite Small.

Me: Damm Good Looking and 6'5" - Quite Big

Yes I was wearing a seatbelt and no there was no air bag in the truck - I had already dropped her off!

I was hit head on and was gripping the steering wheel so hard that it broke and I put both of my hands through the windshield. I fractured both wrists and crushed the carpal tunnels in both wrists as well. I needed carpal tunnel release surgery to fix them. It was the surgery on the left wrist which started the RSD and got me into this hell I live in now!! But I have learned to cope with it, and with the help from some great drugs of course. Just hang in there and know that we are all in this with you. Chin up!!!

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Old 10-16-2006, 02:14 PM #5
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Hmmmm.....so if you have rsd FIRST, and the entrapment SECOND, what do you do about releasing the entrapment if you have one? I read your progression and I don't want that! Surgery is what got me here in the first place, but it was for TOS, so it was major. Still, I don't want to be "cut." And entrapment release means you are "cut." So if that's what this is, and I already have rsd, what do they do about the entrapment? My rsd is already in both hands, but in my right (surgical side) it goes up my arm, into my shoulder, neck and chest. I don't want it going any further.
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Old 10-16-2006, 02:40 PM #6
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Default Things that make you go HMMMMMMMMMM

Good question Lisa. And I have absolutely no idea how to answer your question. I do not think there is any other way to release a entrapped carpal than to do surgery. And I think it is 50/50 as to whether or not it will spread. Boy are you glad you asked me ha! Well this will get bumped back up so perhaps someone else can offer you better advise. Sorry! Chin Up!

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