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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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In Remembrance
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I’ve been trying to figure out what to do with the latest news from my doc, and I guess the best way is to just say that I’m dieing. I could live another three or four months, or it could happen next week (probably not), but I won’t be able to say goodbye when the time comes, so I’m saying it now.
I continue to lose weight and am down to 128 pounds. The problem is that my liver is so enlarged that it is crowding my stomach, and nothing can be done. My doc says if my liver was normal size, I’d probably weigh about 100#. Eventually, I’ll be too weak to eat. After telling me this, my doc increased my oxy, so I’ll have plenty of pain relief, and we shook hands goodbye. That pretty much says it all. In the past, I’ve said don’t feel sorry for me, and I really mean it now; I’ve wanted to move on for a long time now. I know where I’m going, and I know I’ll be happy. My family will miss me for a while, but we won’t be apart very long, and then we’ll be together for Eternity. We’ll all have the opportunity to meet; I don’t pretend to understand how God does things, but I know that loving fathers don’t torture their children. I’ll probably continue to post, but not about my health. I still hope to persuade someone that my hypothesis that RSD is and IRI is correct; and that there is an effective therapy for this disease, so I’ll keep trying as long as I can…Vic
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The great end of life is not knowldege but action. T. H. Huxley When in doubt, ask: What would Jimmy Buffett do? email: : . |
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#2 | |||
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Member
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Thank you for sharing this with us...You are soo strong..You are a fighter and through you we have strength...
I remember you from the 1st time I logged onto this site last year as a scared little girl...You helped me understand RSD immediately and made me understand what I wa facing and what I could possible face in the future. For this I thank you. ![]() Heather
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. "We Will Conquer This Demon They Refer to As, RSD!" . . |
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#3 | |||
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Senior Member
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Well bro, I have to be honest, this makes me sad. But, I do know how much you have been suffering the last couple years, and know you are looking forward to relief. I am sooo glad you know where you are going, and I look forward to the day we can visit.
Im glad your doctor is taking care to make sure you are comfortable. I want you to know that your written work will remain posted on the net as long as I have a place on the world wide web. I love ya much!! ![]()
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. Gone Squatchin |
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#4 | |||
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Co-Administrator
Community Support Team
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wow Vicc...I don't know what to say right now -
I hope you continue to post as long as you are able too. And thank you for letting us know your health status. So often people just quit posting and we never know.... I enjoy your reading thoughts and your spunky personality shows through often. ![]() I will always remember you with a smile.
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Search the NeuroTalk forums - . |
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#5 | |||
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Member
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I'll be looking forward to seeing you again in another place, another time. Thank you for your always insighful and educating posts, just in case I haven't said that before. Personally I think you got a good thing going with RSD and IRI. I see it and I truly hope those that can do something with it will see it as well.
Thank you for being who you are and for letting us know. I, like all the rest who've known you won't forget you. I'll raise a pint (substituting of course since I don't drink) to you when the time comes and well, have a good Irish wake in the tradition of my ancestors. You're a special man and we'll all have lost not only a friend but a light in our world without you. Special Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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#6 | |||
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Magnate
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I am very sorry to hear this. We have been together for years and it seems like we are family. We had such great times on the old BT forum and then here.
I hope you continue to post and I know God will watch over you and get you through the hardest times. I was just talking to my Dr. last night and my feelings have always been pretty much like yours, I'm ready any time God is ready for me. I never could understand why people had to suffer so much for so long though. Please stay with us here as long as you can so we can enjoy you for as long as we can. Love ya, Ada |
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#7 | |||
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Magnate
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Thanks for everything that you have done for me and my mom in the past - we really do appreciate it.
You will be missed very much. Please post for as long as you can. Thanks Alison
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To the World you may be one person, but to one person, you may be the World. |
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#8 | |||
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Member
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vicc,
i'm not the only one who has been saved pain and grief by your advice about anti-oxidants.....because you are always so ready to pass on all that you've learned, i don't think u need to worry too much about "batting averages".....i think u can expect to hear "well done, good and faithful servant"......besides, with the spine problems, and rsd -- you've served your time in h*ll. when u arrive 'home', remember to save a dance for me.....i'll be along when i can. liz |
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#9 | |||
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Member
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Dear Vic,
Wow, I was also in shock. I didn't know that your liver could grow that fast!! I just want to say, your holding on with all your might to this awful disease, the dr. who put you on all these codine pills that tend to enlarge the heart, should have been put on them too! I know, it's too late for you now, but that Doc. needs to be reported so as not to do this to anyone else. You did admit that too much of this codeine plus the acetaminophen is wayyyyyyyyyy too high, you being so thin and small!! darn doctors. With this all said, Vic.. Please know you will be in my prayers and thoughts. ~Love you!~Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#10 | |||
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Member
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Sorry about that Vic.. I said that tends to enlarge the heart.. I mean, the liver.. duh!! I also said it's too late for you now, I am sorry.. I am NOT God.. God will take you, perform a miracle for your liver, or have you live many more years. The Doc's are not our God's.. they help along with God.. BUT IT IS IN GOD'S PARK, MY FRIEND, TO DECIDE IF, WHEN, WHERE?? Love ya!~Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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