[queen178]

I posted earlier about the possibility that I may have RSD... so for no diagnosis. Any way yesterday I went shopping with my sis and a good friend that I have not seen for awhile. I did okay for the first hour but then I started to get the dang tingling and burning Etc. I had to cut my time with them short because I became so miserable. I came home and put on a lidoderm patch and finally got some relief.

Between the hotflashes ( menopause ) and the zinging, I was ready to scream. I seem to be so short tempered lately, I hate loud noises and excessive banter... I just want to tell everybody to shut up. What is up with that?

Okay I vented. On a different note, several years ago I had an ulnar nerve transposition and I was wondering if people with nerve entrapment issues more susceptible to RSD? I didn't have any problems with that elbow after surgery except with a little ache once in awhile.

And does anybody else get nasty cramps in their calves, you know ladies... the ones you get when you are pregnant?

I am probably barking up the wrong tree but I really would like to know what is wrong with me.

Thanks in advance

[dreambeliever128]

I had ulner nerve surgery but had a block to keep it from spreading to that area. My RSD came with Thoracic Surgery and then came back out with rotator cuff surgery after having blocks to get it into remission.

I now have blocks before any surgery where blocks are offered. I think blocks are important to keep it from spreading with surgeries. There is a big possibility you got it with the Ulner nerve surgery.

You didn't say where you had to put the patch. Was it on the elbow or elsewhere?

As far as noise. I can't handle a lot of noise, I can't handle smells. I made a pot of chili yesterday and had to turn it off last night before bedtime and put it in the fridge to get rid of the smell. I had it simmering in the crock pot. I have to do the same with beans. Smells are multiplied 10 fold for me. Noise is the same way. The boys stay with me and I can here them whispering from my bedroom at times. They sure can't get away with much. LOL

I get the cramps in my calves at night and my legs too. I get electrical shocks also. It feels like I am plugged in to a socket.

I don't know if what I have is hot flashes or has to do with my meds. In the summertime they are horrible. In the winter they are tolerable. When it is hot I start getting more electical zaps and more pain.

It's very hard to get any relief with RSD. Hope you start getting some soon though.
Ada

[tayla4me]

Originally Posted by queen178

I posted earlier about the possibility that I may have RSD... so for no diagnosis. Any way yesterday I went shopping with my sis and a good friend that I have not seen for awhile. I did okay for the first hour but then I started to get the dang tingling and burning Etc. I had to cut my time with them short because I became so miserable. I came home and put on a lidoderm patch and finally got some relief.

Between the hotflashes ( menopause ) and the zinging, I was ready to scream. I seem to be so short tempered lately, I hate loud noises and excessive banter... I just want to tell everybody to shut up. What is up with that?

Okay I vented. On a different note, several years ago I had an ulnar nerve transposition and I was wondering if people with nerve entrapment issues more susceptible to RSD? I didn't have any problems with that elbow after surgery except with a little ache once in awhile.

And does anybody else get nasty cramps in their calves, you know ladies... the ones you get when you are pregnant?

I am probably barking up the wrong tree but I really would like to know what is wrong with me.

Thanks in advance

Hello there,

I am sorry you are feeling this way. My heart goes out to you as I know what you are dealing with now.
Being caught without a proper diagnosis is so very frustrating but your doctors need to be treating your symptoms regardless of what your final diagnosis is.
Are you on any anti-seizure medication like Neurontin or Lyrica to help you cope with the tingling and burning?
I hope that something will happen soon that can get you onto the right path towards pain relief.
Take care
Tayla

[queen178]

I am sorry that I was so vague in the last post. Actually my "supposed not yet diagnosed " RSD is in my right foot. I had 2 surgeries after breaking my fifth metatarsal. My elbow is okay. The docs are still not sure but they are treating me with PT, Lyrica and the lidoderm patches. I had an MRI recently and it showed Stress injury and bruising and swelling in every bone in my foot. I am getting confusing info from the drs because they first said is was probably early RSD but not likely? The last time I was there I asked them some questions and he said well, we probably caught the RSD early but in the next sentence he is saying that he didn't think I had it. WELL Dude... Poop or get off the pot I think next month when I go back and there isn't any improvement they will do a bone density test Etc.

The blocks you are talking about... do yu mean like the regional blocks to numb it for surgery? I had that on the elbow, knee and both foot surgeries. I hate general anesthesia because it makes me so sick. I demand regional blocks when ever possible.

[Debby]

"WELL Dude... Poop or get off the pot I think next month when I go back and there isn't any improvement they will do a bone density test Etc."

Queen178,
You are a Queen after my own heart!!! *LOL* I like it. I am with you. What is it with this 'wishy washy crap' they, meaning some doctors, etc, try to deal out to us?? They must think we are ditzy dumb bunny types huh??? Well I for one am not. So tell me like it is & be done with it.

Good luck with all you have going on. I have RSD in both feet since 2003, but only dx'ed since 2004. I get more cramps in my toes than in my calves, but know what you mean.

Like I said, Good luck!!!

DebbyV