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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-28-2008, 11:10 PM
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My physical therapist keeps telling me to contact John Hopkins as they may be doing something innovative there. Anyone know anything about Hopkins?
Debbie |
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02-29-2008, 01:06 AM
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I've not heard of anything Debbie, or seen anything online. But I'll keep my eyes open and yell if I see anything.
Hugs girl Debbie
__________________
'If we don't believe in free expression for people we despise, we don't believe in it at all."
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02-29-2008, 10:29 AM
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My husband started going to Johns Hopkins for ALS last month. He has only been once so far, but we were impressed with the doctors and the facility. It is a research university and I believe they are outstanding for treating many difficult diseases. Good luck!
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03-01-2008, 01:09 AM
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The 2nd doctor that Dx'd me with RSD graduated from John Hopkins and he was the most thorough doctor I have met to this day...I felt so comfortable with him and he knew, with out a doubt, that I had RSD.
Hope this helps, Heather
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. "We Will Conquer This Demon They Refer to As, RSD!" . . |
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03-01-2008, 06:28 AM
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Hi Debbie,
I have heard that John Hopkins has an extremely innovative Pain Management team which includes Anaesthetists, Physiotherapists, Psychologists and Neurologists. On reading their philosophy/mission statement it seems they are truly committed to ensuring their patients are listened to and that treatment is evidence based and individual care. Unlike some Pain Management teams it seems they do NOT focus on removing all medications as they believe that pharmacology is an integral part of treatment for some patients. This sounds really worth a trip  Wishing you good luck Tayla 
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03-01-2008, 11:07 PM
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Thanks for your info but I am wondering what they can offer me as I have been thru it all including ketmine infusion....
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03-01-2008, 11:30 PM
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Not sure Debbie as I can't find the specifics of their program but perhaps they may include graded motor and mirror imagery as that seems to be a treatment recommended by the World Pain Institute. If I can find any more I will sure let you know. cheers Tayla |
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John Hopkins?
Debbie...
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