Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-26-2008, 02:00 PM #1
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Default What might work for memory loss?

I am wondering if there is anything that helps with memory loss or just helping to remember what a person says from one minute to the next.

I sometimes wonder if I ever had a memory, if I did I wonder if it was better then what I have now.

I did good in school and was always proud of the things I could do but now I get really frustrated with not being able to add, spell, remember, or understand what I read at times.

I had a stroke back in 99 and am wondering if that might have done a lot to my mind. I know all of the medical problems I've went through might have done it to just giving up at times and not caring. Now that I can read books and sit still more to go over things I just can't understand why I can't keep some of it in my mind.

Just wondering if others find there memory as bad as mine.

Ada
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Old 02-26-2008, 10:02 PM #2
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Hey.

Okay, this might sound random, but Sudoku has helped my memory a bit as well as my concentration. I try listening to music to help test my concentration. Just dont overdo the music. Turn the radiodown so it is playing soft then work towards the preffered volume.

Hope this helps

nikki
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Old 02-27-2008, 12:37 AM #3
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I've had memory problems as well.

More frustrating is that I've mostly lost the ability to do complicated equations and physics in my head. I can't do most of it at all any more. I do find my command of the language has improved slightly and I write a lot better.

The doctor told me a lot of the memory problems are related to the drugs and would probably clear up if I can get off of them. I use 120 mg of ghinko biloba daily because it helps with pain but this is supposed to help memory. I don't think it does for me.

Long term memory is worst for me but the 10 sec memory is affected too.

There have been numerous changes mentally.
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Old 02-27-2008, 10:51 AM #4
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Default Hi Imahotep,

I don't think my memory loss is due to meds. I am only on methadone, very low dosage, and prevacid. My pain level is down so I know it's not that.

I have a dictionary setting here now by my computer. I hate the fact that I can't spell words right anymore. I get pretty mad at that red line that shows it's spelled wrong at times. I would rather not know. LOL

As far as math, I use to be pretty good at it but not anymore. I try to help the boys with their homework and can't remember my fractions.

My long term memory is the worst. Before I say anything I think about it so I won't get it wrong at times. I don't want people to think I'm lying to them. I get dates mixed up. I can't never remember what the date is. Someone can tell me one minute and I'm asking again the next.

Nikki, What is Sudoku? I don't remember if I've heard it mentioned on here before.

I like music but after awhile it starts getting on my nerves. I can't handle noises for too long nor loud noises.

I wish I could focus more on things then what I do. I can't sit still for long and it takes me forever to read a book due to not setting still to read it nor getting back to it like I should.

Thanks girls,

Ada
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Old 02-27-2008, 07:07 PM #5
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Sudoku is a 9 by 9 box. it is divided into 9 groups of 3x3 boxes. you want to fill in numbers 1-9 and they can only repeat once in each column, row, and 3x3 box. (sorry if thats cofusing)

Yeah, loud music bothers me too. i keep my radio down low.

At first w/ sudoku, it would take a few days to complete one puzzle bc of concentration. now, i can pretty much finish one in a day.
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Old 02-28-2008, 06:32 AM #6
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Default Memory

I have this problems too. Spelling, short term memory is worst, Loss of words when I speak, or I say another word than I ment too? Make a good laugh with family who knows, but strangers? embarrasing.

Med's? Maybe, but it started before I got any med's at all. So maybe the stress of pain get too us? i don't know.

Music, get's to me too, even gives me myoclonus(unvoluntary movement)

Tiril
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Old 02-28-2008, 06:56 AM #7
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Hello ,

I believe memory loss is due to a combination of many things,
*Medications definitely will cause this in some
*Lack of sleep
*Depression
*Constant pain
*Poor diet
*Lack of keeping the mind active.

What can we do? ---I guess that the first few things are very difficult to change with some of us but I do think that keeping the mind active with problem solving games like crosswords or board games really do help.
How about a game of Scrabble with the kids Ada? We play regularly here and whilst I rarely win anymore, I don't make a fool of myself as I used to.
As far as the diet, I think if we all know what we should and shouldn't eat to get the most for our health, so I won't lecture, but poor diet will certainly impact our memory.
Take care
Tayla

Last edited by tayla4me; 02-28-2008 at 06:58 AM. Reason: typo
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Old 03-01-2008, 05:06 PM #8
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MEMORY


Hi Everyone,

I'm a new member here, but was active in reading about RSD on the other forum, I learned so much. I've had RSD since breast surgery in '96. Started the following day with swollen arm, then frozen shoulder, then moved to the other should then one hand, permanently frozen like a claw. Then I was diagnosed by a hand specialist-ortho. Then other hand then one foot and leg then the other foot and leg. Diagnosed again with full body generalized RSD.
I've had all the symptoms you all have listed. It is frustrating and embarrasing
to not remember what we have said and to who. Been thru lot of Drs. that knew very little about RSD.I now have a Dr. who has helped me mainly emotionally and getting on the right meds. He is a Pychiatrist, Neurologist, and Pharmacologist.He said that RSD affects the limbic part of your brain. and that controls memory. I too had memory loss before any meds too. I miss my life before RSD. Sorry about the spelling, lost that too.
Have any of you struggled with weight gain? It's really depressing. I'm really trying.

loretta
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Old 03-01-2008, 09:02 PM #9
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Default Hi,

Thanks for the help on this.

I was reading up on CFS and this is one of the side effects of it. Mine is horrible right now. It is so much worse in warm weather so I'm wondering if some of you might be dealing with CFS also along with the Fibro and RSD. I was amazed at how many side effects CFS has.

I fight weight gained all of the time. I gained 7 lb when I tried Lyrica and got 3 of it off but I am working on the other. I have stayed the same otherwise for about 10 years. It's not been easy to do it either. I watch what I eat and walk and still feel like I have to struggle to keep it down. When I first got sick, I dropped 75 lbs and have kept it off but as I said, it seems like a full time job.
Other symptoms of CFS are inablility to calculate numbers, find the right words when talking, spelling. A lot of what we have discussed thinking it's from the RSD.

How many of you deal with Fibro and/or CFS along with RSD?

Ada

Last edited by dreambeliever128; 03-01-2008 at 10:22 PM.
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