Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-01-2008, 02:20 PM #11
heatherg23's Avatar
heatherg23 heatherg23 is offline
Member
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
heatherg23 heatherg23 is offline
Member
heatherg23's Avatar
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
Post Could be...

If I had meds (now) that worked maybe I could fall into that category. I think when people have meds that work (and when they're feeling good), they do feel a certain power and they feel in control of there life and pain. They might be a little cocky. This isn't in regards to anybody here since i've only been on here a couple times now. When the internet first started there were pain forums everywhere and when I would give a little advise they would get very upset and yell at me ... People just need to be sensitive to other people's issues. There is no reason to argue.
Heather

Quote:
Originally Posted by dreambeliever128 View Post
I have been thinking about this since all of this thing with Vicc.

Vicc has been with the group since we all came from BT over to NT. Very few of the oldies are left due to the things that seem to keep going on here. I see a constant of fighting and arguing here.

My question is, do the meds give people a false sense of security to the point that they say what they want and feel like they can take on the world. Do they make a person feel like they don't care what they say? Do they make people speak their minds whether they are right or wrong?

I am not much for meds and neither is my Dr. He works his *** off on keeping me walking and getting around without me carrying a list of meds a mile long for when I see the next Dr. or end up in the hospital for something.

Again, I just felt like this was a question that people need to think about and I'd like peoples thoughts on it.

This is not to start an argument, I am just wondering if this might be the case in most instances.

I do know that when we take our meds we are in less pain so we think we can do things we couldn't do before such as run a marathon, walk a mile, climb a hundred stairs, then when they wear off we think why did we think we could do that. Again is this the case with talking too?

Ada
heatherg23 is offline   Reply With QuoteReply With Quote

advertisement
Old 03-04-2008, 01:19 AM #12
Auberon Auberon is offline
Junior Member
 
Join Date: Feb 2007
Posts: 62
15 yr Member
Auberon Auberon is offline
Junior Member
 
Join Date: Feb 2007
Posts: 62
15 yr Member
Default

Hi folks,
I would not question anything said before my post in this thread.
I have had really Dr Jekyll & Mr Hyde reponses from Gabapentin & what I call son of Gabapentin - Lyrica. Fortunately my wife was quick to point this out to me & we discontinued immediately with a great deal of trepidation when heading to Lyrica - but that's just me. I kept this at home for my poor dear wife to bear but she supported in the right way & no-one else wore it.

It was a very humbling experience.

As each person reacts differently to each medication this is entirely unpredicable - sorry I state the obvious.

Generally I don't react to meds.....it was quite shocking.
So......to the point of my post......placebo effects can be an almighty confidence builder & even if the drug is working the nasty side can far outweigh the benefits. They should be continued only if they are positive changes.

I agree that meds can be a life & tremendously persona changing event and the person can become so closed minded they become impossible to reason with.

As has been said - we are all VERY SICK or supporting someone who is so & don't need to argue. I came here for what I initially thought was a clean and constructive environment. I needed that & despite the fantastic efforts of the moderators I have felt very reluctant to post.

I, too, have been abused here & I am very aware of how technical I can be in some of my statements on this site given my science background. I am thus reluctant to post because I have been so attacked.

I do hope you don't mind this - I think it follows the theme of the thread so you are all right with what you say here but I would question that time of membership counts for nothing if that member is abusive and incapable of accepting alternate discussions / ideas.

I would most categorically state that should these changes become evident - dose will probably not matter - a different family of drug might be the best action - another time.

As an additional thought, in some, pain can make people tentative & insecure & VERY susceptible to hostility.

Cheers to All
Auberon
Auberon is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gigglebabe (03-04-2008), Goodn'Plenty (03-04-2008), tayla4me (03-04-2008)
Old 03-04-2008, 09:50 AM #13
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi,

I am really sorry to hear what you have been through here and I do know you haven't been alone with those problems.

I am so glad that you saw what those meds did to you. As I had said before Bill was on Noravasc for high blood pressure and it really did a job on him. He just turned into Dr. Jekyll until I got him off of it. My family Dr. would get him off of that one and when he went back to the cardiologist they would put him right back on it. It never phased his blood pressure it stayed the same if not went up because of the hostility he had.

I had never in my life seen him act like he did when he took that Norvasc. It took me quite awhile to figure it out but when I did, I'd get him to go to our Dr. and he'd switch and the Heart Drs. would put him right back on it. I honestly believe they were getting some big ***** kickback from that med. They knew what it did to him. They gave it to him a week before he died.
He had a cebreal hemorage in the back of his head. They couldn't stop the bleeding due to the cumiden he was on. If he had not been on Cumiden they could have. His face would turn red, he would be so angry that he couldn't calm down after he took the Noravasc. When he went off of it, he was fine.

I do think too that the med gives a person a sense of power and then when they have had an education in certain fields they come on here and tend to want to practice them here on the people here. That makes them feel even more powerful.

I am not a college educated person. I do have common sense and at times I think it is more important then a college education due to the fact you can figure out what is right and wrong in the things you do and how you treat the world.

I am glad you found the forum and hopefully you will start seeing better days here and in your health.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gigglebabe (03-04-2008)
Old 03-04-2008, 10:36 AM #14
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Default

No amount of common sense can make up for statistical facts that are presented in a well written response to incorrect data.
That is not hubris nor is it being full of one's self. It is applying what one has learned along the way to approve or negate a hypothesis that has been presented.
It ends up making everyone better informed !!!!!!!!!!!!!
No one should ever be chastised/ignored/belittled for presenting the truth with statistical facts to back it up ,in a well presented concise manner.
And that my friends is what has been going on here .
That is what these kind people are trying to say has happened to them in the nicest way possible if I may be so bold to come to their defense and to mine

And to those championing " Free speech" even for those they despise.- even "Free Speech " has limits imposed on it by the constitution.You cannot yell fire in a crowded theater .You cannot just write stuff about people and and just because you write it ,believe that it somehow becomes the truth .That is NOT what is meant by" free speech".That is why there is something called libel .
Libel involves the making of defamatory statements in a printed or fixed medium mmm possibly the internet??? though traditionally in magazines and newspapers.
However the the super highway falls into this category in ever increasing numbers since it's inception.

In peace
GnP

Last edited by Goodn'Plenty; 03-05-2008 at 12:47 AM. Reason: more to say
Goodn'Plenty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tayla4me (03-04-2008)
Old 03-04-2008, 08:08 PM #15
gigglebabe's Avatar
gigglebabe gigglebabe is offline
Member
 
Join Date: Oct 2006
Location: Tennessee
Posts: 111
15 yr Member
gigglebabe gigglebabe is offline
Member
gigglebabe's Avatar
 
Join Date: Oct 2006
Location: Tennessee
Posts: 111
15 yr Member
Default

But not all statistical facts apply to everyone. Facts like that are based upon mostly a small amount of people. Therefore common sense has to come into play.

And I do agree with you "No one should ever be chastised/ignored/belittled for presenting the truth with statistical facts to back it up ,in a well presented concise manner." But that should go for everyone.

As for Freedom of Speech....you can write what you 'know' as the truth...sometimes it is wrong...but it is what you know...and until you know and are shown otherwise...you assume it is truth. No one is perfect.

It's like you can sit 10 people in a straight line and tell the first person a sentence like ' I made a chocolate cake', and by the time it's passed on to 10 other ppl..it becomes 'I saw a chocolate cow'....therefore, what one person knows as the truth, might not always be correct. But it what they heard. So it's hard to judge that line in freedom of speech.

Ada, I am so sorry this happened to Bill. Bless your heart girl, I know he was your life.

I've taken meds that have affected my thinking as well. That dang neurotten, I never knew what I was doing from one min. to the next.

My husband started taking a med, to help loose weight awhile back, and he became Dr. J and Mr. Hyde...real fast...and I told him real fast it was going in the trash can. He would be fine one minute and the next he'd bite ya head off...and you'd be like..what the?!

I think meds can affect everyone differently...and I think they can give people a false sense of security. I've known ppl who took prozac and went nuts...and they were fine before taking it, and let them miss a dose and it was WW3....

Thanks for starting this thread Ada, it makes a lot of sense girl.

Hugs
Debbie
__________________
'If we don't believe in free expression for people we despise, we don't believe in it at all."
gigglebabe is offline   Reply With QuoteReply With Quote
Old 03-05-2008, 12:33 AM #16
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
Default

Quote:
Originally Posted by Goodn'Plenty View Post
No amount of common sense can make up for statistical facts that are presented in a well written response to incorrect data.
That is not hubris nor is it being full of one's self. It is applying what one has learned along the way to approve or negate a hypothesis that has been presented.
It ends up making everyone better informed !!!!!!!!!!!!!
No one should ever be chastised/ignored/belittled for presenting the truth with statistical facts to back it up ,in a well presented concise manner.
And that my friends is what has been going on here .
That is what these kind people are trying to say has happened to them in the nicest way possible if I may be so bold to come to their defense and to mine

And to those championing " Free speech"- even "Free Speech " has limits imposed on it by the constitution.You cannot yell fire in a crowded theater .You cannot just write stuff about people and and just because you write it becomes the truth .That is NOT what is meant by" free speech".That is why there is something called libel.

In peace
GnP



Hi GnP,

I get you.

I would never argue the point with, for arguments sake a Mechanic who had been successfully performing his job for decades, as one would presume quite comfortably that he would be somewhat of an expert at his profession.

If I tried to put forward an unsubstantiated hypothesis to him about mechanics I could not possibly expect him to accept it without discussion and I could not feel "set upon" or "stalked" when he offered me the correct facts UNLESS I had proof of what I was hypothesising to back me up.

In medicine there are some things that are simply black and white, no argument, no discussion, just fact based on sound medical knowledge and research over the ages.

With RSD/CRPS we have not reached that stage, nobody is really an expert even if they profess to be one.
After 8 years of study and 32 years in the Medical Profession I am still learning but there are SOME things that I am confident that I am knowledgable about.

This disease is a difficult one, we are all sick, many of us VERY sick. This forum needs to be one of support and caring and listening, not abuse and backstabbing.
Surely nobody feels good about what has been going on?
All I can say is 'what a shame'

Regards Tayla
tayla4me is offline   Reply With QuoteReply With Quote
Old 03-05-2008, 08:10 AM #17
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 28,467
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,467
15 yr Member
Default

This discussion on the effect of medications on how a person reacts/functions etc when on them is a very important and relevant topic.

Where we sure do understand that a lot of members have strong feelings on past events, yet for the sake of moving this forum forward, I am hoping we can keep this on topic re medications and how they affect people, rather than specific to any particular individuals or events or disagreements.

This *is* a self help support community and so we do want all members to feel able to share their experiences and information and knowledge in a non-confrontational environment, and we thank you all for working with us to make it so.

thanks
Cheri
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (03-05-2008), ali12 (03-05-2008), gigglebabe (03-05-2008), kimmydawn (03-05-2008)
Old 03-05-2008, 07:01 PM #18
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
Default

Quote:
Originally Posted by Chemar View Post
This discussion on the effect of medications on how a person reacts/functions etc when on them is a very important and relevant topic.

Where we sure do understand that a lot of members have strong feelings on past events, yet for the sake of moving this forum forward, I am hoping we can keep this on topic re medications and how they affect people, rather than specific to any particular individuals or events or disagreements.

This *is* a self help support community and so we do want all members to feel able to share their experiences and information and knowledge in a non-confrontational environment, and we thank you all for working with us to make it so.

thanks
Cheri
Cheri,

Perhaps the thread should be locked Cheri as even if the intent was to not have this reaction it was bound to happen when a particular member's name has been used in the original post.
I believe the discussion about drugs and what they do should never be aligned to a specific persons behaviour.
There is way too much of an undercurrent of negativitywith members being maligned on other sites ,to allow this thread to continue.
As I said in my post---it is such a shame! Many have become too afraid to share experiences, knowledge and support for fear of the backlash.
Cheers
Tayla
tayla4me is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
trixlynn (03-05-2008)
Old 03-05-2008, 07:59 PM #19
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Tayla,

I wasn't referring to Vicc as the problem, I was referring to the problem centering around the constant fighting with Vicc and others and meds in general.

Just to get the question back on the subject.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-05-2008, 08:10 PM #20
gigglebabe's Avatar
gigglebabe gigglebabe is offline
Member
 
Join Date: Oct 2006
Location: Tennessee
Posts: 111
15 yr Member
gigglebabe gigglebabe is offline
Member
gigglebabe's Avatar
 
Join Date: Oct 2006
Location: Tennessee
Posts: 111
15 yr Member
Default

I think Cheri is doing a great job. She reminded us to stay on topic of the thread. And the topic is clearly about how meds affect people. Even if it is about a certain forum family memeber. Ada was only wondering if meds could cause people to feel and do things without thinking things thru clearly. I think the replies have mostly stayed on topic of the original post.

I for one have had problems with meds doing the very same thing to me. Snapping before I think. It happens to us all.

But I don't think this thread should be locked, its a very important thread, and could help others who might have issues and insecurities with meds.

I think Cheri did a wonderful job in her reply.

Of course it would be wonderful if we didn't have to have a thread like this at all, if no one were to ever have problems with meds. Wouldn't that be perfect! We can keep dreaming I guess.

Hugs
Debbie
__________________
'If we don't believe in free expression for people we despise, we don't believe in it at all."
gigglebabe is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
my sense of taste is very confused... PunkDizzle Multiple Sclerosis 8 01-26-2008 08:46 PM
The Anti-choice Crowd Is Pushing To Give Embryos The Rights Of A Person BobbyB ALS News & Research 0 12-09-2007 09:05 PM
No sense of time. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 12 01-09-2007 03:07 PM


All times are GMT -5. The time now is 03:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.