I had a hysterectomy in 95 due to fibroids and other problems. The Dr. I had was suppose to do a complete one due to all my problems. He decided he'd leave one overy in that wasn't any good. So in 2001, I had to have the other one taken out along with a lot of scar tissue and ended up with RSD in that area. The hospital where I had the surgery knew nothing about blocks and still don't or I would have had one the last surgery. It turned out my other Dr. said the overy most likely wasn't any good and should have been taken out at the first surgery. Now I am paying for a Drs. mistake. This Dr. also got ran out of town not long after my surgery also.

It's hard to know what to do to deal with what is going on with you. Any surgeries though I would ask for a block first.

I'm glad to see Jewell's also. I have wondered many times how you were doing?

Ada

Ya know Ada, I didn't even think about blocks. I'm glad you mentioned that. But who do I talk to about that? The pain doc? or the gyno? Who would do that? would that be something to be paid for by wc? Or my ins? ugh..this all sucks.

Do you think I should ask for blocks for the burning/freezing...should I do one or the other? There is no cutting...just destroying the lining...ugh...this is all so stressful.

I'm so glad I have you to ask all these questions

Hugs
Debbie

Hello there i am very new here i was just letting you kno that when its that time for me the RSD pain gets much worse. they say that when anything happens to your body it affects the RSD and i belive that when you get the cramps and bloating and uncomfortableness (sp?) it has an affect on the RSD pain and it makes it worse, Hope that i may have helped a lil. *~STACIE~*

Hey Girls...
I know this post is old, but I have to bring up this topic again because it is effecting me.
I am 28 years old and have ALWAYS have nolmal periods. They have been very light periods and have usually lasted 3 days at the most.
I was diagnosed with RSD in Aug 06 of the rt. foot and Full-body, Systemic RSD in Jan 07. I had a baby in Dec. 07 and my periods still were normal but lasted about 5 days.
Then, about 4 months ago I started having heavier periods and they would end at day 5, and start back up at day 8 but they would be very light and brownish dishcharge (sorry to gross out you guys reading) So, I thought this was just the end of the period coming a little late. Now, by month 4 it seems like the bleeding is just coming and going from day 8-16 or more.

Plus, I was having pain during sex (which I never had before). I feel burning, and basically I feel RSD (that is what my gut tells me)

So, I decided to go to the Ob/Gyn, because it was also 1 year post birth of my 1 year old. I got my results today and there was nothing wrong. My Ob tells that RSD has spread to my Uterus

What are everyone's thoughts on this??

Thanks!!

I've never heard of RSD spreading to a uterus, but maybe others have.

I know how you feel, as I had similar issues for two years before my recent hysterectomy, and my pain went up when I had my periods so it was a big nightmare, that is thankfully all over now. Mine wasn't related to my RSD, it was a separate issue believed to be a byproduct of getting my tubes tied when I had baby #4.

Hopefully some others can offer you some insight on this, and I'd ask your pain specialist what he thinks, but from my understanding RSD can't affect your reproductive organs. I hope you get to the bottom of it soon.

x Kate

Here is an article at the RSDSA which addresses the issue of undiagnosed internal organ pain and rsd: http://wehelpwhathurts.homestead.com/visceral.html

Here's an article at the RSDSA on pelvic pain and rsd: http://www.rsds.org/3/education/pelvic_pain_gerwin.htm

Here is Hooshmand's puzzle about rsd and internal organs. Right after the 2nd paragraph he mentions in the one sentence there about inflammation of the ovaries: http://www.rsdrx.com/rsdpuz4.0/puz_34.htm

That's all I can find on it. I have known a couple of women, in the past almost 6 yrs I've had rsd, who also had pain in the pelvic region/uterus that was rsd as there was nothing else it could have been. Every test was normal and they were fully checked out.

I believe you can have rsd pain anywhere inside and out. The nerves in our bodies touch every single thing inside of us, ergo, rsd can affect anything it wants to. I'm very sorry that you're having pain in that area. As if rsd wasn't bad enough just in our limbs. In cases like this, hope this doesn't sound funny, but I hope with pain being in a spot like this, that it's something else, like a cyst or fibroid. That at least can be taken care of one way or another and will make the pain go away.

Hugs,

Karen

Thank You for this...I appreciate your care on this. I will print these and bring them to my PM right away. He will be so stoked that I found someone that found something on the topic.

I know that there is nothing else that it could possibly be, after reading the 3 articles.

Thanks again,
Heather

Karen,
That is very interesting info you gave on the pelvic pain. Thanks for that.

I am dealing with exactly those issues. I do believe I have RSD inside and out in my pelvic area. I have been given triggerpoint injections inside and outside.

The weather sets me off so bad and now it has spread through my legs and my feet. My legs get ice cold. I am sore to the touch, inside and out.

They have checked me for everything going. I do know that I have IBS, and volvodina, interstital cystitis but we have been able to get some of these issues under control. Right now we are working on the IBS.

I have no doubt that I am dealing with RSD in my pelvic area and it came from the last surgery I had about 4 years ago to remove scar tissue. They went in again a couple of years ago and removed some scar tissue but each surgery has made it worse due to not having a block in the lower half. We now have a PM Dr. in the hospital here so I am hoping others donot deal with this like I am doing.

I do believe in blocks.

Thanks girls for great info and great help to all of us.

Ada