Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-27-2008, 11:23 PM #1
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Hi Gigglebabe

I've always had a problem with this too, so much so that I was totally out of action for that week, so I started taking the pill without taking the sugar tablets- just skipping them so I didn't get a period. Perfect!

But now after having Hannah almost two years ago (who can believe she's almost two!? ) I've been having 14-27 day periods, with only a few days break before they start again. It's been driving me nuts! I tried going back on the pill but now it doesn't make any difference.

I've also had the hysteroscopy, d&c and biopsy with no great findings. If my rsd didn't get worse when I'm like this I could probably put up with it more, but I just can't keep going like this all the time, its exhausting and so disabling.

Anyway, I hope they can find some way to help you. We don't need more flareup triggers, hey?!

x Kate
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Old 02-27-2008, 11:51 PM #2
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I too have increased pain at that time of the month. It really sucks! I didn't notice it much in that first year, mostly because I had no pain relief so an "increase" in pain because of my period didn't register. I began seeing my pain doc in dec 05 and getting pain relief. It took awhile for anything to register with regard to my period and increased pain. The funny part being I wasn't even the one who made the connection! It was my hubby who began noticing the pattern and so one month asked me, when's your period due? I told him and then when it was over and the pain went down he mentioned it to me again. Every month after for about 3 months or so he kept an eye on when I was due and sure enough, there's that increase in pain! Glad hubby pays attention to things. LOL

Hugs,

Karen
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Old 02-28-2008, 12:44 PM #3
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Hi Karen

Thanks for writing. I'm glad your hubby was paying close attention. I've had heavy periods for a few yrs now, but nothing like it has been in the past 6 mons or so. It's just unreal. And seems to really cause a lot more pain when it's going on. I hate it. Hopefully my ins. will make up their mind soon, in my favor.

Hugs to you

Debbie


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Originally Posted by GalenaFaolan View Post
I too have increased pain at that time of the month. It really sucks! I didn't notice it much in that first year, mostly because I had no pain relief so an "increase" in pain because of my period didn't register. I began seeing my pain doc in dec 05 and getting pain relief. It took awhile for anything to register with regard to my period and increased pain. The funny part being I wasn't even the one who made the connection! It was my hubby who began noticing the pattern and so one month asked me, when's your period due? I told him and then when it was over and the pain went down he mentioned it to me again. Every month after for about 3 months or so he kept an eye on when I was due and sure enough, there's that increase in pain! Glad hubby pays attention to things. LOL

Hugs,

Karen
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Old 02-28-2008, 12:42 PM #4
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Hey Kate,

It's great to see you. Having it go that many days certainly is a pain. We sure don't need anything else to keep things flared up. That's for sure. How's Hannah doing? It's hard to believe she is almost 2 yrs old! Wow, seems like she was just born yesterday!

Hugs
Debbie
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Originally Posted by Cake View Post
Hi Gigglebabe

I've always had a problem with this too, so much so that I was totally out of action for that week, so I started taking the pill without taking the sugar tablets- just skipping them so I didn't get a period. Perfect!

But now after having Hannah almost two years ago (who can believe she's almost two!? ) I've been having 14-27 day periods, with only a few days break before they start again. It's been driving me nuts! I tried going back on the pill but now it doesn't make any difference.

I've also had the hysteroscopy, d&c and biopsy with no great findings. If my rsd didn't get worse when I'm like this I could probably put up with it more, but I just can't keep going like this all the time, its exhausting and so disabling.

Anyway, I hope they can find some way to help you. We don't need more flareup triggers, hey?!

x Kate
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