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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-28-2008, 01:31 AM | #1 | ||
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Junior Member
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Hi Everyone
I am in Colorado and there is a lady out here named Helen. She has arranged a meeting with a city council person and is pleading for funding and goverment reconigtion for MEDICAL RESEARCHH FOR RSD. There has been a lot of work done out here. She needs people with RSD to contact her and get on the database to show the need for this recognition. Her website is (rmrsd.org). The group is called Rocky Mountain RSD/CRPS. You can also contact Helen on this website and get information on this research that they are trying to get funded. I wait each and every day for the cure of RSD as I have full body centerlized for over 11 years now and to top it off I am pain medication intollorant. I can't even take colindine cream due to extreemly low blood pressure (80/60) on a good day. Does anyone know natural things that work and I am open to sudgestions. Thanks everybody and don't forget to contact Helen as Goverment Recongnition would be a great start. Goodnight |
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"Thanks for this!" says: | gigglebabe (03-04-2008), Sandel (02-28-2008) |
02-28-2008, 03:01 PM | #2 | ||
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New Member
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I've been reading a lot about Hyperbaric Oxygen Therapy as well as some articles on Cold Laser Therapy... also, taking high doses of antioxidents (like grape seed extract (300mg 2x day) and/or juices like Acai' seem to help some in some people...
Best of luck to you in looking for some relief... Last edited by Curious; 02-28-2008 at 03:32 PM. Reason: mod edit required per guidlines |
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02-29-2008, 01:11 AM | #3 | |||
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Junior Member
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Hi Lindecker,
You asked, "Does anyone know natural things that work and I am open to suggestions." Try some essential oils to either rub on your skin or bathe in, they will help relax you and that is a very needful thing. Try some deep breathing exercising along with some acupuncture, not to be confused with acupressure with the needles, although some have tried that and have had rave reviews on it, others.....not so good!! And Roofee is correct about antioxidents, it does seem to help. I will keep you in my prayers!! Love, Peace & Blessings, Coach Marla |
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02-29-2008, 08:39 AM | #4 | |||
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Magnate
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for the website. I went over and read quite a bit of it and it sounds like they are trying hard to get research and they do have some great info on things like Ketamine treatments.
I wish it was closer to me but as far as I can tell it's up toward Boulder. Ada |
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03-01-2008, 12:49 AM | #5 | |||
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Member
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http://originbiomed.com/usa-en/index.php
I have ordered the Neuragen PN and have had 2 other RSD'ers order it in 1 week...It's amazing...You can read the testimonials on the website from other RSDers...It's 100% Homeopathic and it topical....it takes away 75% of my pain in 5-10 minutes... Hugs, Heather
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. "We Will Conquer This Demon They Refer to As, RSD!" . . |
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03-01-2008, 07:30 AM | #6 | |||
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Magnate
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Thanks for sharing the link with us all. I am so pleased that you have found something that takes away 75% of your pain - that's great.
I will check it out and see what my mom says Thanks again Alison
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To the World you may be one person, but to one person, you may be the World. |
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03-04-2008, 11:20 AM | #7 | ||
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Junior Member
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Hi
My name is Melody and I live in Sterling CO. Where do you live? My son has RSD and it is awful. Thank you, Melody |
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