Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-22-2006, 08:48 PM #11
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well lets see... first i was msdrea83, then i got kicked off cause of some idiot, then i was lildevilrsd.... so i went back to my original name!
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Old 10-23-2006, 12:56 AM #12
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Question

I was Sage836 before.

I'm not up to speed - what happened that caused this new board to take over -tho I notice the old board is still there?
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Old 10-23-2006, 01:54 AM #13
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well first i was msdrea83... then i got kicked off cause of some idiot, so then i was lildevilrsd... so now i'm back to my original name!
Hi Andrea,

I was thinking of you coupla days ago how are you doing? I remember you had moved to California (or back, rather) but not to Santa Cruz? What have you been up to - how are you? Tell all!! - So pleased to see you posting

all the best
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Old 10-23-2006, 02:06 AM #14
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I was Sage836 before.

I'm not up to speed - what happened that caused this new board to take over -tho I notice the old board is still there?
Hi Sage,

Well, you found us, that is great. Basically the old board went down for 3 months over the summer, with no updates. We were offered this site by the good-hearted DocJohn...and seem to have kinda stayed, although many people post between the 2 forums.

If you go back to the early pages in Forum Feedback on this site (most of the relevant threads in FF at the hastypastry site have been deleted by mods I think..) you can read the history (be warned, it is quite a long and painful read!)...but that is it in a nutshell...

Amazingly, nearly everyone seems to have found us and this is a really wonderful board. So glad you joined the gang

all the best..
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Old 10-23-2006, 10:44 AM #15
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Smile Hi! It's Me, and I am still ME! LOL

Hi!

I used to be Joselita...and I still am! LOL

I don't know what I would have done if I couldn't gone by that screen name. I have been being Joselita in some form or fashion on the net for about 1/3 of my life so far. Yikes, when I think about it like that. ROFL

Sage Sweetie...I am soooooo glad to see you here! You have been missed! I am so very happy that you found your way here to our new home.

Sage...Instead of having to go and read all of that...erm....stuff....that lots of very unhappy, upset, lost, sad, and some down right angry people wrote back a while ago when BT crashed and stayed crashed for so long....you can go here: [Catch-Up Post Link], and read a sort of summary that I wrote for KathyWP when she came on and was wondering what the crap went on, too. LOL, if that makes any sense? First, if that sentence makes sense...and then just the thought that I (of all people! LOL) am summarizing anything! LOL, I know, I know...but I really did. Much shorter, and easier, and MUCH less painful to read then going through all of the old forum feedback stuff.

If however you still want to do that...look for closed threads. There got to be so many going on at one time, that DocJohn said there could only be ONE thread going on about BT (aka OBT or Original Brain Talk, since this place used to be called "Braintalk 2"). So, look for closed threads, and titles of threads that say something about "BT" in them. WARNING, though....there is LOTS of hurt feelings, and fighting among the members of the different sides of the schism that has occurred.

Anyway..I wanted to let you know how HAPPY I am that you found us here. I am so glad! I hope that you like this new place as much as I (and lots of others, it seems...LOL) do. It is a very nice place. Very laid back, and I really like DocJohn (owner or #1 person), KimmieDawn (admin or #2 person), and ALL of the mods! Have you noticed that our VERY OWN Mod is none other than the Famous ZombieSlayer? Cool, huh? We have our own resident Techno/Computer Geek/Nerd (No offense meant at all...at BrainTalk he STILL IS a "Braintalk Nerd", afterall! LOL) right here on our board! We just have to get him to TALK, as he has been pretty quiet..... But Curious (another Mod) pops in from time to time too, and always has something nice; either hugs, or CHOCOLATE! ROFL.

OK...I am babbling, so it is time to go. LOL I hope that my link to that "Summary" helps.

Love and ((Hugs))
Jose

PS Link takes you to Kathy's thread. You have to scroll down to find my post. Sorry..I have never figured out how to post links to JUST a certain post within a thread....

Last edited by Joselita; 10-23-2006 at 10:46 AM. Reason: Checked link....and added the PS.
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Old 10-23-2006, 10:57 PM #16
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Hi!

I used to be Joselita...and I still am! LOL

I don't know what I would have done if I couldn't gone by that screen name....
(Firstly, thanks for directions to your precis back history, we must work out how to target that specific post, I don't know either...)

Well, on BT1/OBT I am *not me!!!*. Someone pinched my name - ok, it's artist not the artist, but goddammitt (There is only ONE artist in the world, of course, goes without saying...and that's ME!). Harrrummmph! Bah humbug, what a cheek!

Must have happened to quite a few people, with having to login again. Ah well, never mind-------> grumble grumble grumble

all the best
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Old 10-23-2006, 11:36 PM #17
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Hi Andrea,

I was thinking of you coupla days ago how are you doing? I remember you had moved to California (or back, rather) but not to Santa Cruz? What have you been up to - how are you? Tell all!! - So pleased to see you posting

all the best
i'm doing alright... i just got back from a cruise to italy and greece... its so what i needed! but when i got back home the weather had started to turn chilly so my pain has gone up... maybe i should go back! lets see.... i'm no longer being seen at stanford, my insurance changed and they pretty much booted me out of the pain program, so i'm seeing a local pm here who has continued my oral ketamine, it helps when i take it but i do get rather... intoxicated when i take it. sometimes i feel like i'm drunk, i space out a lot, get side tracked easily, if i close my eyes sometimes i still feel like they're open but i'm in like another place.. its really weird. and then when my eyes are closed i sometimes feel like i'm floating.. i dunno its weird. i had my stim removed in july... that went very well. i was out at my friend's show like 4 days after, granted it was at a roller rink so it wasn't like i couldn't sit and there weren't like people banging into me. my pm now is trying cold laser treatment on me... its not really doing anything but getting my arm warm... its supposed to have the same effects as blocks... but i had no relief from the blocks so i dunno... i'm back assisting in dance classes. as much as i can. i go to court this thursday for disability. so keep your fingers crossed!!! other then that, i mostly go to my friends' shows and take pictures.... i'm glad to be back in cali that's for sure. the town i live in is in santa cruz county, its like 10 miles from santa cruz... but nobody ever knows where it is so i just say santa cruz!
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Old 10-23-2006, 11:46 PM #18
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me think jose mentioned choccy ....cookies anyone?



((((hugs))))
Curious

Last edited by Curious; 10-23-2006 at 11:54 PM. Reason: :D added the S for andrea...so she can have more than one.
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Old 10-23-2006, 11:48 PM #19
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how could i resist one?! thanks! yum!!!!!!!!!!!!
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Old 10-29-2006, 12:47 PM #20
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Thumbs up well hello there ya'll..

I am still Sandel Sandra actualy and I have sure missed you guys lots.. (found you found you happy dance)

The research capacity alone of our group before was phenominal, and I had so hoped to see more of the same somewhere.. I just dint think I'd find my origional research team lol.. An I have worried about you all wonderin how yr doin..

I will do some reading and catch up soon.. I too have been dealing with spread and I have organ involvement happinin that is pretty scary, wonderin if anyone has any first hand knowlege.. My doc as usual thinks it is something else been through alot of testing, going for MIBI test tomorow down island..

soft hugs all around,
sandra
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