It’s been awhile since I’ve been here. It started with computer problems then I had a lot of problems that just caused me to hole up for awhile.
I was scanning some posts and was saddened to hear about Vicc. I am asking if someone that knows how to get hold of him to please pass on a message for me. Thank him for all the information, encouragement and support that he has given me over the past 4 ½ years. I learned so much from him. I have some of his research and am still taking the GSE thanks to Vicc. He is in my thoughts and prayers.
I don’t know what happened regarding this board and Vicc since I was not around. I remember someone telling me when I was new, to take what I wanted and leave the rest.
I want to welcome all the new people. There is so much knowledge here. Thanks to the people here, I did not have unnecessary surgery and increased pain. RSD is so complex and affects many of us differently. It’s been helpful to me to get different viewpoints and suggestions and then consider which I think will be the most helpful to me.
I will try to be around as often as I can now to offer support.
Linmare

Hi Linmarie,

Welcome back! I and newer here again also. My name is loretta. I too and sorry about Vicc's health and whatever happened. I can't tell all you on the forum, just how much I've been helped learning about RSD. I didn't get help for a long long time. so I know just how much early help and personal knowledge is absolutely important. Lin, you used the word 'hole up' is that common to a large percentage of us. I didn't used to be like that, but now I hardly leave the house and really don't like to be around people. I like to talk on the phone to keep in touch, use computer, cards, etc. It's really hard to push myself out of the house. Anyone else??? Oh, I'm sure someone will have Vicc's e-mail address. How did you get RSD and when? And how long till diagnosis? and did it spread on you? I've just changed from neurotin 3200 mg. to Lyrica 400 mg. and and doing better. Had a full body spasm last night, almost turn me completely over. Hadn't had any electric jolts or seizures for a long time. Well, hope you have good day .

Soft Hugs, Loretta