Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-20-2006, 08:40 AM #1
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RSD_Angel RSD_Angel is offline
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Join Date: Oct 2006
Location: Greene, NY
Posts: 153
15 yr Member
RSD_Angel RSD_Angel is offline
Member
RSD_Angel's Avatar
 
Join Date: Oct 2006
Location: Greene, NY
Posts: 153
15 yr Member
Wink Hi guys i found ya!

Hey there everyone!!

I found you all, after being so long with out BT boards adn i read a post about this one, thank god i found it before the name change too!!

I have missed you all, and hope to catch up with everyone too!! I have been going through **** and back since last time we all talked and only getting worse.

I saw my doc in sept and he finnaly decided that a pain pump is my next step and having baclofen and some other narcotic in the pump to try and flatten out my foot and also help my pain, bc it has gotten out of control. I usually have been able to sleep through the nite once i find a good position where im nothing is touching my foot , but now its soo bad that it just aches and horribly hurts just laying there and if i do get to sleep, it wakes me up just with intense pain in my ankle. but you all know how that is and its just finally either changing the pain levels or?? and im feeling it again, when i have become "numb" to it to a point before.

I decided to take some classes at a local college to see if i could get my mind off of it and also be able to get my second degree. I am taking one nite class once a week in math (god its been 10 years since i took math and im bad..lmao but have a 91 in the class so far..) and the other 3 are online classes so i can self pace myself and do them when ever and even at 3 am when im awake!! All those classes are doing good and the professor knows what i am going through and understands that i might be a little late on submitting a test, and says its not a prob and wont mark me down for that either. so i guess i am doing ok and to a point that it is taking my mind off it, but sometimes its just to great and im glad that i have foudn you all agian!! you are the only ones that really know what im going through!!

I decided to get the pain pump on Jan 8th. so i wouldnt miss or get really be hind in any of my classes. if i knew that my doc had this in his pocket i wouldnt have signed up for classes but i saw him 3 weeks after they started so i was stuck.

Does anyone have the pain pump?? i would like to hear stories of the surg's and having the pump good or bad. I want to be prepared for this when i go in, and i have been throuhg having a stim and a peripheral stim put in and i know its nothing like that!! Any help would be MUCH appreciated !!

Ok.. gotta try and get some breakfast!

Love,
Amber
(RSD_Angel)
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