Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 03-31-2008, 03:17 AM #1
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Karen,
What a nice post! You just made me do a lot of thinking after reading your post! This is all so very, very true and I for one want to thank you for such a positive attitude that you have! Wow!! Such meaning in all of this that you wrote! You truly amaze me. I have a good friend who is dying of lung cancer(She never smoked a day in her life,) the doctors some how related this cancer to the breast cancer that she had 3-4 yrs. ago. The cancer has not spread, but it is wrapped around her main artery of her heart. They had her on the strongest chemo and it still will not shrink it. She NEVER complains, just says she's pretty tired. She coughs so much that her entire chest, back ribs hurt her. they even removed the breast that had the cancer in it and she is going down hill pretty fast. She has a good strong support of her family, has an 11 yr. old daughter, still go's to church. I don't know how my friend(Amy) comes to grips with all of this too. She asks me how I am doing? How I feel.. never about herself. she never says why me? She is now having Hospice coming to her home. She is around a 10 hour or more drive away from me. I seen her not too long ago and you can tell she's hurting, but is intent on listening to everyone else and how they are doing. So, again.. Karen, thank you for your "eye opening reply". ~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 03-31-2008, 07:33 AM #2
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart Not2Happy...

Sorry to hear that you are dealing with RSD too - I really hope that you can get your pain levels under control soon!

I sometimes too think "What did I do to deserve RSD" but then I realise that it was not mine or anyone else's fault that I developed RSD.

Try and think of the things you can do and not the things you can't do - I find that it helps!

It also helps to know that I have some good friends and that most of my family are supportive.

Hope this helps you.
Pain free hugs,
Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 03-31-2008, 11:40 AM #3
MarkB MarkB is offline
Junior Member
 
Join Date: Jul 2007
Posts: 15
15 yr Member
MarkB MarkB is offline
Junior Member
 
Join Date: Jul 2007
Posts: 15
15 yr Member
Default

"I would like to know what the heck I did in my lifetime to deserve having this tossed my way."
What does anyone do to deserve their lot? What do Anna Frank do, or the 6 million Jewish people do? What did, what did, it can go on an on, both ways.
But, I think You should consider about talking to your doctor about depression. We absolutely deserve the right to be depressed.

"I want a refund on my life."
I'm assuming we have all thought about getting a do-over. Even the person with one of the biggest do-over stories ever, Lazarus, ended the same way. He died. He still became old and lost the ability to do the things he could do in his youth. It can't be about what we cannot do; it has to be about what we can still do. I used to worry about smoking cigars. I don't anymore. I used to worry about the social ladder. Well, I still worry about it, but not as much and not in the same way.

"How do you guys come to grips with dealing with this stuff, knowing that you never really will be free of it until the day you leave this Earth?"
It isn't how we have come to terms w/ it. Our spirits our different. It is how will you. What brings you peace? What brings you joy?
Still, rail against the pain; rail against the lack of options. I wish for you a means of finding peace, joy and happiness that passes beyond the comprehension that should be experienced by those in such pain.
MarkB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ali12 (04-01-2008), nopainever (03-31-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Monster in a Wheelchair BobbyB ALS 3 07-28-2007 04:27 PM
new here, new crps? mrsmac Reflex Sympathetic Dystrophy (RSD and CRPS) 12 05-03-2007 01:57 PM
For Your Information: ALS - "The Monster" BobbyB ALS News & Research 1 04-30-2007 11:48 AM
Ice and RSD/CRPS Bronco4586 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 04-27-2007 10:45 AM


All times are GMT -5. The time now is 06:15 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.