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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-18-2008, 09:03 AM
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Hi Ali!
I do not have any spasms but I do appreciate you sending that out, so that other's who may be having the same thing, be it in their legs, arms, fingers etc. know that they are not alone. May God bless you, Ali. My prayers are with you sweetie!!~Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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| "Thanks for this!" says: | ali12 (04-18-2008) |
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04-20-2008, 03:35 PM
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Junior Member
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I have not seen this sort of spasming. I have not had that happen to me. I did watch another U2 video of someone else that showed those signs. I am so very proud of you sweetie..what a horrible thing to have to deal with when all you want is to talk to the girlfriends and do fun pink stuff. Well the necklace is being made up for you. I assume a bracelet would be too owie for you to wear, but if not let me know....Loves and hugs-jo
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| "Thanks for this!" says: | ali12 (04-20-2008) |
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04-20-2008, 04:01 PM
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Wise Elder
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My hubby has those kind of spasms but he has MS, not RSD. Thank you for sharing and I hope you find out what they think this is. We do the same thing when seeing the doctor about something new. It's a great tool.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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| "Thanks for this!" says: | ali12 (04-20-2008) |
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04-23-2008, 12:24 AM
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Magnate
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Heather
Sorry its taken so long to reply You asked about the frequency of the spasms They are pretty much on a four minute cycle - during the first three minutes of each cycle just the toe twitches and tremors on a regular basis - eventually this builds up the the whole leg shaking from the thigh down for the last minute of the cycle, then the whole thing starts again The frequency can be made worse if Ali has a knock - which is inevitable when the leg is so "active" Hope this helps Ali's mum
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06-15-2008, 09:41 AM
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Ali, thank you so much for posting the video. I have leg spasms too. Not quite to that level yet but getting there. it is so comforting to know that someone else has somethng you have and that you havent been misdiagnosisd. Ofcourse I am very sorry we both have them. I was worried my might have MS now too. But I guess it is just another manifestation of RSD.. thank you again Ali. Nice to hear from you too.
 CZ
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