Desi,
I am soooo sorry to hear that you are going through this right now, I hope and pray that your RSD isn't spreading.
You're in my thoughts.
Love ya
Alison

Hi Mary, my very good friend, whom i just adore!! You are indeed always there for me! Mary, the Dr. ordered the blood tests that I had on Friday, so I hope I hear more this Monday. Ya, know... come to think of it. I had this swelling in the fall and couldn't go to our county fair, but it only lasted a few days. This is going on 3 weeks?? a month now? I too hope that there is no spread of rsd or arthritis! ~Thank you so much Mary!!~Love ya, Desi

Hi ya Allison!! Sweetie, thank you so very much!! I heard that you were going through a lot and still are. I'm so sorry!! How is everything going for you now? Love ya, Desi

Desi,

I wish you the best & hope & pray that it is NOT RSD. I've been to all the docs, had all the tests, etc & they can't find anything else wrong with me other than the RSD (& fibro). The leg pain gets to me way worse than the hand pain because it really limits the amount I can stand & walk. If I lay down & prop my legs up over the heart it seems to give a little bit of relief. I haven't found anything else to help in the four years that I've had this in my legs.
How do the support hose work for you?
Linmarie

RSD causes arthritis.

My doctor told me I was "remarkably arthritis free" when I first got RSD and especially so for someone of my age who did so much physical work. I started getting just little bouts of arthritis three years later. Now I get huge flairs where walking is very problematical but it usually doesn't last long.

I've found that cod liver oil seems to work wonders. I take it in the evening a couple hours after my last meal whenever the arthritis flares. For the first few months I needed it nearly every day but now it's just once or twice a week. If you rinse your mouth out with salt first and chase this FOOD with water it's really not so bad. I've come to almost like it.

The drugs for arthritis have provided very limited relief so I'm still looking for one that works. These drugs are pain killers since there's nothing that can be done now for the disease itself. I find the arthritis far less limiting than the RSD so far almost all the time.

Hi. My issue is in the inner ankle/foot. Very painful. Anyhow did you have an mri done lately? For me when my pain is high nothing can touch that area. I mean no socks or even lidocain patches. It does feel the best keep my leg up a little. What part of your ankle and foot exact? You said it just happened and I know with my other leg I had a flare up that lasted and still comes and goes but it just all of sudden happened. I hope you get answers and relief

Hi ya Linmarie!! It is so very good to see you post! I do hope that life is treating you good! I got a phone call before noon today and the woman there says all my x-rays came back good!! They are all (Including my family dr.) waiting on the resuts of the blood tests now. I asked her if I have arthritis? At first she said no, then she said well, we will have to just wait on your blood tests. She then said she wanted me to fast so they can do a stomache and pelvis test to see if anything is laying on main arteries and such?? She told me she will call back. This scares me so much, but like a good friend who suffers from RSD told me, worring will get you no where. The problem will still be there!! So true, So true. I know I have to remain calm about this. But, darn it!! It's hard! LOL As soon as I awake in the morning my hands look so huge , swelled, painful, then when my feet hit the floor as soon as I get out of bed to go to the bathroom, I actually almost wanna cry, my feet and legs hurt so bad! The hose feels like gentle messages, but early in the evening, I can't wait to take these off, as they start hurting under my knees where the band is. I should try to over lap them. But, I did notice that the first day I wore them from morning to evening and I took the support hose off, my feet were not swelled. They swell up again, when I get up. I told the nurse, about this and didn't tell the specialist who ran the tests or my PCD that my hands hurt, and my feet are killing me, I mean right now, even though I am sitting here typing very slow as my hands are both cold, painful (It only used to be the right RSD hand that hurt)!! Hmmmm.. now, the left?? I keep thinking RSD spread!! Thank you so much for your kind post Linmarie!! I will also keep you in my prayers also!! God bless you sweetie!~Love, Desi

Hi there Imahotep! Oh wow!! the first sentence of your post says RSD causes arthritis! I never knew this?? makes sense though, after thinking about it!! cod liver oil? can you get those in capsule forms at GNC stores(Health stores?)I am taking fish oil. I am on Fentanyl 75MCGfor the pain, and tylenol #3 or 2 tramadols for the break through pain. The pain is still there, I wonder what it would be like if I took nothing for pain?? "A HUGE OUCH" on that! what meds are you on? Well, take care and thank you for this eye opener about RSD causing arthritis!! ~Love, Desi

Hi daniella! I did have a sonogram of my left leg to rule out any blood clots. I haven't had an MRI since Feb.2007. My ankle and foot is about where yours hurts. My legs are killing me too so much. I am always hogging our bath tub, as the warm water is a blessing!! I can't stay in there forever, but as soon as I get out of the tub and my feet hit the floor, I have to sit down in our bathroom covered toilet seat, then hang on to the sink, door, then walk out and it seems like I have walked a mile or more.
I too hope that I get answers and relief too. If not, I want to talk to my doctor about going to Cleveland hospital and have a darn assessement. watch the blood tests come back normal. I still kinda feel it's RSD why oh why am I having this feeling that it is?? Please someone tell me?? I am sick of all these tests, blood work, 8 steliate Ganglion blocks that never worked, physical therapy, I was not allowed to do that anymore, as I kept on getting flairs from it!! I don't know what the matter is with me! I am so sorry for rambling on. I will pray for you, to get what you need ,done daniella! Is that your name? If so, I love it! take care of you!!~Love, Desi(Diane) wish my name was Diana!! that's the least of my troubles though! LOL

No. My real name is Gina. I like Daniella too. Anyhow what are you going to Cleveland Clinic for? I ask cause I did part of there pain clinic day program and saw an anestesolgist there. I wish I had more answer and relief for you but I am in the same horrible boat as you. I am in so much pain right now in a horrible falre up. Hang in there.