Hi,
Sorry to hear that you had to go through this RSD mess at such a young age! I have 2 daughters, age 20 and 14. I can't imagine if anyone of them would suffer RSD. My 14 y.o. suppose to have her bunion surgery, but i postphoned it due to the chance of having RSD from the surgery.
I don't know too much about Katemine coma. However, i do hope it will bring you full remission. You deserve a much much better life. I will pray for you.
What did your doc say about the chance of getting RSD in your heart and chest? I have never thought of RSD will attack that area as well.
Wishing you best of luck and pain free!
Numb

Dear Numb,

RSD/RND can attack practically anywhere it likes in the central nervous system, i had never thought it could attack the nerves directly around the heart though either but it can. The RSD doctor in Philly Dr. Sherry told me after i had went through his program for the 3rd time and it failing to work this time that i was suppose to just live with it. Which years before i had full confidence in Dr. Sherry and still do for external RSD/RND but i am afraid i have found his general knowledge and experience in the stage i am in now unfortunately is not there. Thats why Dr. Schwartzman is my final option as he has been dealing with far more cases than Dr. Sherry and has been studying RSD for over 30 years. The Ketamine Coma is my last resort i am not going to even acknowledge the possibility of it not working. I thank you for ur prayers and luck i need all i can get.

Hey Austin,

My 17-year-old daughter also had RSD in her stomach, and she too participated in Dr. Sherry's program. I agree with your thinking that what they do there does have the potential to help although Sarah, like you, found no relief for her abdominal pain.

I read that you have tried every imaginable treatment, and I'm sure it seems like that; but I just had to ask if you have ever had a chance to try hyperbaric oxygen treatments. They were the one treatment that finally stopped Sarah's pain and allowed her to return to the many activities that she was missing out on.

Hang in there, Austin ... and never, never give up hope!

Jeanne

While yes it has seemed like every treatment possible i have never heard of the "hyperbaric oxygen treatments" but i will be sure to contact my doctor once they open this morning and will ask about this. At this point i am trying any suggestion that others with RSD/RND are using that i have never heard of. I thank you for this new suggestion. You have given me a new sense of hope to rely on. As well it is nice to hear from another that has gone through Dr. Sherry's program. Thank you for your post. Hope you and sarah the best of the pain free years.

Hi again Austin,

Your doctor's knowledge of hyperbarics (hbot) may be limited as it is something that many have not been taught in medical school. There is a neurologist in Florida (you can google rsdtherapy.com) who has had lots of success treating RSD with hbot. On this site is a link to a Discovery Health Channel Broadcast about a young girl who was bedridden with RSD for over 4 years, until her family came to realize that hbot was key to her recovery. The last I heard she was in medical school and doing well. We did not go to this doctor; but I am so very thankful that we found his site, as that is how we first learned of hyperbarics.

If you or your family would like additional information, I would be happy to try to help.

Jeanne

Actually yes i very much would, as my doctor told me today that they only use the Hyperbaric oxygen thing for severe wounds and he thinks they wont allow me to do it will RSD. So what do i do? Thanks

Hi Austin,

I've been researching for my own treatment after failing most other.

I found a treatment center in Tampa that does ketamine treatments run by Dr. Kirkpatrick. I know Dr. Schwartzman has a long waiting list.

Dr. Spiegel does hyperbaric oxygen treatments in Palm Harbour Florida.

Hope this helps. Best of luck.