Hi I was reading old threads to try and find some help with lesions. I came across a thread about red dots with rsd and tos etc.

I am not sure who started this thread but thank you. I have the red dots too. I have full body rsd and have recently had my first full blown lestion. horrible. large . looked like large long blood blisters. about 4" across and long. Very very painful initially. Just horrible looking. I dont know how to post pictures if an admistrator would pm me i would really appreciate it. I also think that the post about the red dots possiblly being shingles, or herpes voster is a real possibitly too. Since rsd destroys our immune system,, intractable pain wears it down to exhaustion, our adrenal system is in great stress and our immune system so weak. These other nerve disorders from a weakend immune system can appear- even though the begining of them is rsd red spots.. that is my belief. I just had tons of blood work taken during my lesion to see what is happening. The blood test its self was ofcourse a disaster. they blew two veins so so painful, my arm and hand , yes they hit both arms , look like a war zone. Sorry for the departure. anyway i feel they can be related. However, since I had red dots and lesions and rash on both sides , torso, arms, and legs, neck- it cant be shingles specifically I guess as it does not cross the body, it is not bilateral. anyway , the thread let me know I am not alone with these problems and I am so appreciative. Entering my 5th year of this diseasse I am still questioning with each new development ... what is this? is this something new? Is this RSD or something else.Its terrifying. I am so thankful for this site.It is so comforting to come here and find that others are having them same ordeals-although I am so sorry everyone is going through this- but I hope you know what I mean that it brings comfort and you know you are not alone. Thank you- this was a great thread. I just found it I have been off for a while. CZ

It's just the RSD! I have those "red dots" all over and I have had them since I first got RSD. I've had quite a few sores from them. To me they look like tiny blood blisters and the ones that feel slightly raised are the ones that turn into open sores. Thankfully they've all been very tiny so haven't had any really big sores. I'm sorry that you have such a huge one! *hugs* RSD just sucks all the way around.

The only thing I know to do is keep it clean, put antibiotic ointment on it and watch it. If it looks like it's getting bigger then get the doc asap. I've known many people over the past 5 years who have watched their sores get very big. One guy had them all over his legs and they wouldn't heal. It was horrible! I felt so bad for him. He started hbot and while it didn't do anything for his rsd, it did heal his sores! That was the coolest thing ever.

Hugs,

Karen

The one that got so big started from my robe belt knot pressing in to my side while i was sleeping. I got a huge flare from that then it blistered then it turned in to like a blood blister- horrible looking. now it is almost gone but it was terrifying. Now I make sure none of my clothes are going to irritate me. I cant stant that this alloydina can cause this is just all so bizzare. thanks for the hugs same back to you, cz

I'm happy to hear that it's almost gone. The things RSD does to our bodies. It was amazing to me at first just how many things it screws up. Now not amazed but alert to my own body and what it's feeling.

Hugs,

Karen