Hi ,
I don't have RSD, but TOS and myofascial pain.
But the thread title caught my eye.
And the heat/cold/barometer changes affect those conditions too.

I'm sure you all have had your thyroid /hormones checked too?
that could be playing a part too.
{just curious about that}

I think the heat is WORSE than the cold, but the cold makes you tense, which is bad for the spasms.

Any rise in the heat makes me feel like my fingers are going to spontaneously start on FIRE. My hands are hot to the touch...when I touch people, THEY JUMP they are so hot. However, the cold BREEZES do hurt. And the cold AIR also - because if you think about it - very hot mixed with very cold makes a "tornado" - so very cold air touching my very hot hands causes pain - almost like - what the heck is that? Where if it's too long in the cold you lose your limbs??? DANG MED BRAIN!!! I know you all know what I mean.

It's any change, but if there is a heat source, such as yes...a lightbulb, a stove, even a hot plate of FOOD that I am trying to eat off of, or a bowl of soup, even trying to eat a taco (first time I had taco's was the other night...and I had to hold it with a napkin....too hot for me to hold now with my rsd hands!). Even the slight rise in heat will be way too much.

On the other hand, I don't like to take an icecube from a tray, grab a gallon of milk from the fridge, take the ice cream out of the freezer, etc. Any EXTREME is intolerable to me. Only in different ways. I can get CLOSER to the cold than I can to heat for some reason. I just "don't like" the cold...I can't TOLERATE the heat.

Is that odd? LOL!
Hugs
LisaM
pSST....***MEOW*** Here, Birdie, Birdie, Birdie!

However, cold makes me shiver, which tenses me up, which does send me into a flare. I get muscle spasms really bad...and because of that, shivering is no good. NO tensing at ALL is good. And sometimes you don't even realize you are tensing.

Hi all y'all.

I think that I am the odd man out in the thread here, as I am severely cold intolerant. I HATE FALL here in the South, as we really only have two seasons, one that is HOT, and one that is COLD. LOL. Fall starts the COLD Season. (For an example of what I am talking about...just last week before last, we were hitting temps in the upper 80's. Then Fall fell on us for real, and we are now having trouble getting out of the 50's, and waking up with frost on the ground. BRRRRRR! Too cold for me! And, way too drastic of a temp change all at once. But, such is life down here in The Land Of Cotton. LOL).

I do much better in the HOT seasons. My only troubles then come from the Humidity, but since that is something that I have to deal with all year long down here...I would rather deal with it in HOT weather than I would in COLD weather. Actually, I am very much looking forward to when I move back out West to the Warmer, DRYER climes, as I do so much better in those. Still hurt, and still have symptoms...but just do much better over all.

I also have the sweating thing that you are talking about Hope. Not quiet as bad...but for some reason I seem to sweat MORE in the colder temps? The only thing that I can figure is because of the heavier clothing? I mean, I live in soft, thick (but VERY loose) hunting socks, sweat pants, and either sweaters or shirts of varying sleeve length....with my throw constantly at hand when I am in the house. I also have a couple of ponchos that my Mom made for me that work VERY well (you might check out using those? No sleeves at all to hurt arms? And...you can stick arms out, or pull them in and cover up as needed when your temp changes? Also, very easy to get on and off, as long as you make sure that they have buttons and not just neck hole, which can be kinda hard). No smell, either....which I am VERY glad about...but don't quite understand?

I also agree with you and Flippinout about the sweat being an autonomic nervous system issue, because when I have a RF done the limbs that are affected are nice and dry for a while, until the nerves grow back together. Sometimes I even wind up with a nice dry hand or foot for a few days after I have just a plain old block done. Don't know why...but I am not complaining one bit! It does feel weird, though, to have one moist side and one dry side (when I can get my doc to do both upper and lower procedures for me during the same OR visit). I have also had sweating when I have stopped taking meds that would cause it, too. Have not noticed any increase in it when started them back? Very weird. But, that is RSD for you.

LisaM...I did want to tell you...I also have been told I am SIP too. Have been for...well...years now (I have had RSD going on 10 years...and didn't get my first blocks until about 2, 2.5 years into this mess...). I have blocks done, both for upper and lower body RSD on my right side, and DO get relief from them. You might give them a try, and see if they give you ANY kind of help, because some help...even a little...is better than none. Sometimes it is all that is needed to calm down what has been, or what will turn into a horrible flare. If you have NEVER had a block done.....I wonder why?

Anyway...I just wanted to add my hat into the ring here of folks that were not liking this weather change. I HATE it! But, then...I hate it being COLD at all, and cold to me is when it gets below 65. Damn cold is anything below 60, and freezing is...well....I don't even want to think about it! ROFL. Feel bad for my poor kids, because I cam constantly harassing them about having their coats...and PUTTING THEM ON...when I feel cold. They aren't small, little kids either, but are 17 and 19 years old. ROFL. Needless to say, I get LOTS of eye rolling, and lots of tossing jacket/coat over arm to carry, only to shut me up (not that it works, because the Point is to PUT IT ON, not to Carry It! ROFLMAO!! OMG!!!! I have turned into MY Mother!!!!!)

Oh well. I can't help it that I am Lizard Woman. I should have tried to change my name to that for this new forum, maybe. LOL. I just know that I am already day dreaming about Nice HOT sun shiney Summer days, when I can go outside and soak up the heat and try to get these bones warmed up. Since bones are only 37 years old, I am wondering what is going to happen when they are older bones....and need more warming up? Hmmmmmm. Maybe I need to move to Equador or something! ROFL!!

Hope that everyone has a WARMER (if they want it...or colder, if they prefer that..) and Drier day today, with lots less pain! Watch out for the weather changes, as there seems to be fronts zooming all across the country right now. *Sigh. Not a good thing for any of us, I think.

(((Hugs)))
Jose

Jose, I have no idea why. After my TOS surgery, the PT doc wanted to do a block, my my surgeon said in his opinion it was "too soon after surgery" and that area was too sensitive still. He said it would really be too sensitive for quite a long time. In his opinion, for "up to six months." Granted, it was probably swollen for that long, which would make it difficult to find the proper area for the needle to go in, so I woulnd't want the block done then anyway (I've heard horror stories of the needle being put into the wrong place!). After that, though, even my MD, and the pain doc, all said no. That they would do no good "at this point" and that "it's too late." I've had several doctors tell me this.

I'm just doing what I'm told...just like the rest of y'all are...going with the program...which is about all we can do. LOL!

Hugs
LisaM

Sitting here way in the middle of the Pacific Ocean, brings in a new prospective. I actually keep my A/C on all the time. Keeping the thermostate at a constant 78 degree's removing the humidity from the air. BUT...Even though I can keep a constant temperature, and our weather is mostly good, I find my internal temperature levels flucuate from hot to ice cold and so does my pain levels. I have a tendency to watch the barometric pressure. This if anything seems to be the factor here in Hawaii.

What I managed to stop years ago was the sweating from my whole being and especially my RSD arm. This maybe just a timing factor w/ my RSD arm, as my atrophied fingers, arms and frozen shoulder began to move as numerous blocks and a continuous epidural started to work on me. But, I found out the major sweating problems were hormonal. I'm on meds for this now. So, as suggested here, it maybe a good idea to have a test done to see if your hormones are out of whack. Many have had children...many may be on or have been on birth control, so many things can throw our ladies systems off.

Now....where's the Birdie? I think there maybe a Tiger or two in the house!

Good Luck to ALL in todays game ....Let's PLAY BALL.