Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-25-2006, 12:35 PM #1
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LisaM LisaM is offline
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Join Date: Oct 2006
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LisaM LisaM is offline
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Join Date: Oct 2006
Posts: 276
15 yr Member
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Heidi, I don't recall who said it, but someone said they tend to read "rsd" into every ache and twinge their body gives out. I also found myself doing that for quite some time. You have to train yourself NOT to do that or you'll have yourself in full blow full body rsd in no time (i your mind, that is) LOL! You'll get the flu, and think "OMG! I have rsd in my tummy!" You'll get a kidney infection and think, "OMG! Rsd reached my kidneys!"

Yeah...it's hard not to panic with this disease at first...especially if you've read a lot about it on the net. I've broached a lot of things with my (very patient) pain doc and he said, "Don't believe everything you read on the internet...stick to the reputable sites, and stay away from the kooky ones that don't have science behind them." Now, I tend to believe that a message board of THIS caliber, with THIS caliber of people HAS science behind it. If you could have seen the links and research stuff that were on the old message board before it crashed, you could see how seriously these people take this disease, and just how much they know. They don't take it lightly...and they don't just throw things out there on a whim. They do say they aren't doctors, tell you what worked "for them" and they also base a lot of what they say on what the "general practice" is. BLOCKS are usually ALWAYS the first line of defense.

Please do cheeck back and let us know what the doc says...but just don't fall into the "omg, I'm rsd all over!" trap like some of us happen to do here and there, k? LOL!

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LisaM
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