I have a medtronics neurostimulator that helped lots, but recently the pain has been coming back and now where the stimulator is in my back it feels like I have a blow torch in my back and the docs say to go see them asap and I have to go to houston first thing in the morning. Is there anything I can do??? I m in severe pain!!!!

This may sound really stupid, but have you turned the stim off? Have the leads moved at all- is it stimulating an area it's not supposed to, or is it just the battery?
Lynn

Well I went to the doctor and the leads 8-15 on my neuro stim are not working. They believe that The leads have moved. I am going to have surgery on Thursday to revise the leads. Also I am not getting any relief for my right leg where my RSD is now. I am ready to have this fixed now!!!!

Now for better news my first and only baby girl will be born in 8 weeks. I have three step kids but I finally have one of my own coming!!!!!

Hi Dana,
I must say I am quite familiar with some of this situation (not the baby) but I do my happy dance in my mind later in the post.

My lead moved to TOUCH THE NERVE ROOT & consequently paralysed me through electrocution - the doctors didn't admit this until X-ray. I was stuck in a chair and could not move enough to get a magnet or anything to swittch off. This was ANS device. Fortunately my wife was home and could run to the shed - I was hit so hard by this that the only magnet I could think of was not the one supplied with the unit but my welding clamping magnets.
They workled & I had to leave it switched off, non-functional until I could find another doctor with the expertise to retest the implant and see if it could be made to work & this has subsequently been removed and I now run much more effectively on an intrathecal pump which we are still titrating to an appropriate dose.....I understand why that path was not followed for you.

A couple of observations but I would prefer to relay them in a PM if you want at another time as I don't wish to steal the happiness of your message and possibly start a storm.

Good luck with getting it to work & WOW - (yes, I am shouting) BEST OF LUCK FOR YOUR BABY GIRLS' ARRIVAL. That is just fantastic news.
Happy tears!!!! I'd try to do a happy dance too but I would end up unceremoniously crying in pain - too confusing, so if you don't mind I'll stick with your happy news celebrated passively.

I understand the bit about the RSD in the right leg - where mine is.

Hugs & I hope they can sort it out on Thursday for you - the leg I mean.

Shouting again. GOOD LUCK THURSDAY!!!!

My very best wishes to you all
Auberon

Congrats on the baby

I hope the stim issue can get fixed easily and quickly

I just wanted to say that I do hope your pain level is lower today. It sounds like you are in so much pain.

Congrads on the baby as Jo said. I sure hope you start feeling better soon where you can enjoy that little one.

Ada

I had the surgery and still have lots of pain, I woke up balling and my wife has never seen me cry like that before. The wire was broke. They had turned the stimulator all the way up.

OH geez - I know that had to be a major ouch!
I had my electric muscle stim pad come loose a time or 2 and acidentally turned the dial the wrong way a couple of times while it was on.... yeoowwweee

I had a stim by medtronics implanted in April 08, revised battery Oct 08, now it hits my rib cage, and hits right on my pants no matter what kind I wear. I'm 48 years old and don't wear my pants down down around my who ha, so this is very uncomfortable. Today my pain is almost more then I can handle. my revision was in the middle of Oct. but all the sudden this week my incision area is fire engine red and hot to the touch. You would think that if there were going to be an infection it would have happen a long time ago. My stim has never worked properly. I was electrocuted during the programming process, it wouldn't shut down. The medtronics rep. was horrified, I was sitting in the chair, didn't get just shocked or just jolted but electrocuted for several seconds. He got it off just before I was passing out. I go in for the removal on Dec. 17th, it's been a night mare. My stim is in the back not the neck. Has anyone else had problems with Medtronics stims? Thanks in advance for your help.







I must say I am quite familiar with some of this situation (not the baby) but I do my happy dance in my mind later in the post.

My lead moved to TOUCH THE NERVE ROOT & consequently paralysed me through electrocution - the doctors didn't admit this until X-ray. I was stuck in a chair and could not move enough to get a magnet or anything to swittch off. This was ANS device. Fortunately my wife was home and could run to the shed - I was hit so hard by this that the only magnet I could think of was not the one supplied with the unit but my welding clamping magnets.
They workled & I had to leave it switched off, non-functional until I could find another doctor with the expertise to retest the implant and see if it could be made to work & this has subsequently been removed and I now run much more effectively on an intrathecal pump which we are still titrating to an appropriate dose.....I understand why that path was not followed for you.

A couple of observations but I would prefer to relay them in a PM if you want at another time as I don't wish to steal the happiness of your message and possibly start a storm.

Good luck with getting it to work & WOW - (yes, I am shouting) BEST OF LUCK FOR YOUR BABY GIRLS' ARRIVAL. That is just fantastic news.
Happy tears!!!! I'd try to do a happy dance too but I would end up unceremoniously crying in pain - too confusing, so if you don't mind I'll stick with your happy news celebrated passively.

I understand the bit about the RSD in the right leg - where mine is.

Hugs & I hope they can sort it out on Thursday for you - the leg I mean.

Shouting again. GOOD LUCK THURSDAY!!!!

My very best wishes to you all
Auberon[/QUOTE]

Oh Geesh! I'm so sorry you're going through this, and your story really scares me! My sweety's stim is in the back, but it's not Medtronics, it's Boston Scientific. He's been having quite a bit of pain the past couple of days, and he's feeling really down right now because his trial went so well, and it seems that the implant isn't helping as much as the trial did. I pray he doesnt end up having anything like this. My thoughts are with you, and congrats on the baby!