Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-14-2008, 08:24 PM #2
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GalenaFaolan GalenaFaolan is offline
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GalenaFaolan GalenaFaolan is offline
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Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
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First, I'm very sorry you have rsd at your age. It breaks my heart everytime a young person comes in and has this.

There is no difference between them, they're all the same thing. I've notice that for anyone under 18 with rsd/crps that docs say they have rnd. Don't know why they do it but there it is.

The rsd one is the "old" name. They changed it to crps a couple of years ago because it more accurately describes the whole thing. It is complex, it's regional meaning it can be in a wide area of the body, it's painful LOL and a syndrome describes this problem has many symptoms that make up the whole thing.

So many names for the same thing, rsd. I crappy, painful disorder that I wish could be cured. I don't agree with those numbers and that many kids are pain free after therapy that long. The ones I've met along the way sure as heck wouldn't agree! BUT at the same time, young people may and sometimes do respond better to the therapy side of things and go into remission a lot more than adults. Your nervous systems and bodies are more.....flexible in a lot of ways than an adults. There are those as well that therapy doesn't do a whole lot for and sometimes don't "get better" like a doc thinks they should.

Therapy, physical therapy is to work the affected body part, namely an arm or leg so it won't atrophy and become useless.

Hugs,

Karen
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Living, loving and laughing with RSD for 14 years and counting.
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