Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-14-2008, 12:26 AM #1
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Unhappy whats the difference ..

whats the difference between Reflex Neurovascular Dystrophy [RND] Reflex Sympathetic Dystrophy [RSD] and Complex Regional Pain Syndrome [CRPS].. i dont get it im 16 they told me i have RND i have the pain in my belly but generally my whole body is sore but my belly is the worst .. i cant even barly totch it ..


this is from an article


About two to four children per 1,000 have the disorder, which also is
known as Pain Amplification Syndrome, Complex Regional Pain
Syndrome, Amplified Musculoskeletal Pain Syndrome and Reflex
Sympathetic Dystrophy, said Dr. David Sherry, clinical director.

and this is another part of it

Dr. Sherry said about nine in 10 children treated with the therapy remain
pain-free after five years, a better success rate than less intensive therapy
regimens, medication or surgery.

that was from 2005

Last edited by smccoox; 06-14-2008 at 12:53 AM.
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Old 06-14-2008, 08:24 PM #2
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First, I'm very sorry you have rsd at your age. It breaks my heart everytime a young person comes in and has this.

There is no difference between them, they're all the same thing. I've notice that for anyone under 18 with rsd/crps that docs say they have rnd. Don't know why they do it but there it is.

The rsd one is the "old" name. They changed it to crps a couple of years ago because it more accurately describes the whole thing. It is complex, it's regional meaning it can be in a wide area of the body, it's painful LOL and a syndrome describes this problem has many symptoms that make up the whole thing.

So many names for the same thing, rsd. I crappy, painful disorder that I wish could be cured. I don't agree with those numbers and that many kids are pain free after therapy that long. The ones I've met along the way sure as heck wouldn't agree! BUT at the same time, young people may and sometimes do respond better to the therapy side of things and go into remission a lot more than adults. Your nervous systems and bodies are more.....flexible in a lot of ways than an adults. There are those as well that therapy doesn't do a whole lot for and sometimes don't "get better" like a doc thinks they should.

Therapy, physical therapy is to work the affected body part, namely an arm or leg so it won't atrophy and become useless.

Hugs,

Karen
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Old 06-14-2008, 09:32 PM #3
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Quote:
Originally Posted by smccoox View Post
whats the difference between Reflex Neurovascular Dystrophy [RND] Reflex Sympathetic Dystrophy [RSD] and Complex Regional Pain Syndrome [CRPS].. i dont get it im 16 they told me i have RND i have the pain in my belly but generally my whole body is sore but my belly is the worst .. i cant even barly totch it ..


this is from an article


About two to four children per 1,000 have the disorder, which also is
known as Pain Amplification Syndrome, Complex Regional Pain
Syndrome, Amplified Musculoskeletal Pain Syndrome and Reflex
Sympathetic Dystrophy, said Dr. David Sherry, clinical director.

and this is another part of it

Dr. Sherry said about nine in 10 children treated with the therapy remain
pain-free after five years, a better success rate than less intensive therapy
regimens, medication or surgery.

that was from 2005
I just wanted to say sorry that you have to deal with this! I got RSD when I was 15, so I understand the being so young thing. I went to prom on crutches and pain killers. So if you ever want to talk to someone that is now an adult, but was about the same age as you feel free to pm me about anything.
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I have the support of a loving husband, and two wonderful children. They make me get out of bed everyday, and fight the pain of RSD
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