Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-13-2008, 01:52 AM #19
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Desi Desi is offline
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Join Date: Apr 2007
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Desi Desi is offline
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Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
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Hey Lady!!
Good seeing ya Rosie!! Are ya still being behaved over there? LOL
I sure hope so!! How's your man these days? Ok, anyway, yes my PCP did confirm the RSD. Like I mentioned in one of these posts, he has many patients he treats with this disease. Frogga, it wasn't my legs that I was having problems with, it was mainly my ankles swelling up. My PCP gave me pills for fluid/swelling and he ordered me the support hose that I lost around a week ago! hmmm... I will have to look for these. Also he wants me to elevate my feet. Hey, Rosie, I finally heard from SSI and my lawyer is putting this through pretty fast. I was denied the first time. So, I received yet another letter from SSI(My lawyer got one too, letter) It said Because I disagreed with the first decision on my disability claim filed with social security administration, they are reconsidering this decision. And If the hand/ wrist specialist I went to also, does not write to them within 10 days from the date of this letter, they will make the decision on my claim without waiting for this report. So, it indeed is a WAITING game with them!! I just hope and pray that I do get it!!

Rosie, you mentioned the Dr.'s wanting you to have for your only hope, DBS?? Then you not wanting to get off all the meds?? I don't think he can do that! He has to ween you first. Who knows?? Maybe the DBS will help and you won't need the meds?? Look at me talk!! LOL I am on so much too and am still debating if I want the SCS or not!! I have so much to think about. A good buddy of mine on this board has it, loves it!! Still, some have it, say the leads move around, Oh, I don't know?? decisions... decisions.. eh? LOL
As for Bill, he may be coming home next week, Rosie!! They mentioned another month and I firmly believe the prayers of all have began to heal him. Please keep him in prayer that the docs do let him come home. I go up there so much, the cost of gas being so high, still, I don't care! I miss him. It's true, you never know how much you miss somone, until their gone for a long time!! I hope you come to the right decision of what you want to do Rosie. I am sorry that your still not feeling so well. Tons of love to you, too Rosie! ~Love, Desi
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