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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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RSD has made me afraid to do normal activities...

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Old 06-28-2008, 08:37 AM #1
Coffeebean Coffeebean is offline
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Imahopet, that is exactly how I feel. Unless people know what RSD is and what it involves, they can not understand the fear. I am getting so afraid to drive anymore, for fear of an accident and more pain. I am so glad to hear others have these fears (but not glad for your pain) and that I am not just being a baby.
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Old 07-03-2008, 12:01 PM #2
daniella daniella is offline
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daniella daniella is offline
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I too understand. I fear going to the doctor even cause some that don't know that much about it will want to touch my effected area and that keeps me in back to viodin pain for a long time. Even knocking my leg makes tha pain rise. I fear falling so much. I am suppose to get a scs too and even with that or if my pain went away tomorrow I would be super careful. Never forget this. I am trying to find an rsd group too but the one in my area was canceled for a few months cause the leader got sick with her rsd.
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Old 07-10-2008, 06:52 PM #3
Iffynah Iffynah is offline
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That sounds so familiar. I'm afraid to do to much at work, I'm afraid to do much around the house, I'm even afraid to do much with my 8 month old daughter. I mean I do what I can. I do the dishes but hard to hold onto the scruber and bottle cleaner. I've been wondering how ppl deal with this too. I just can't get past the fear of it spreading worse, unfortunatly it is still spreading my whole right side seems to be affected.

Tiff
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