Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-05-2008, 10:57 PM #1
tiredofthisoxoxozxo tiredofthisoxoxozxo is offline
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Default pain meds for kids/teens

ive had it for 2 years and i dont understand why just becasue im 16 i shouldnt be allowed to have pain killers i mean im in pain im not going to get addicted and im not trying to get high i just dont want to be in pain anymore even when i have my appendix taken out i had 12 pill to take 1-2 every 4 hours it was like not even 2 days worth and in the past 2 years they were the only 2 days i wasnt in pain .. i dont understand why i should be in pain i need something i cant keep living like this if i was 18 i would get them but casue i go to the childerns docters i cant take anything to releve my pain has anyone gone through this or is there anyone eles who is in pediatrics who actually recives pain medicean .. and i even go the the pain management docter!! its redicouls
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Old 07-05-2008, 11:39 PM #2
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Hello tired and welcome to NeuroTalk. I don't have RSD, I have MS but I hear where you're coming from.

I'm a 57 year old grandmother but I'm also a retired nurse! I do understand your question and as age has no barriers when it comes to pain, why should age be a barrier when it comes to pain medications? I wish I could answer to that for you!

There are many strong pain killers around these days that don't fall into the opiate (or Morphine type) variety. Not all pain killers are addictive, but all do need to be used with caution.

Have you been offered anything stronger than Paracetamol, and if not .... did any-one say why not?

I can certainly understand why a doctor would not want to be starting a young person on the road to dependence when it comes to pain killers, but surely there must be something they can do for you!

May I suggest you post something similar to this in our medication forum, with the hope that our medication expert "Mrsd" might see it, and offer her advice?

Here's the direct link to our Medication Forum: http://neurotalk.psychcentral.com/forum72.html

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Old 07-06-2008, 08:03 AM #3
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Hi. I understand and am sorry. I am older 29 but if I hear one more time the doc say your young and we don't want you on a lot of meds I will scream. I understand where they are coming from cause I don't want other issues but at the same time how am I suppose to make it to an older age in chronic hell pain. Have you been to a pain doc like anestesologist? I encourage you to go to one because for myself I have been offered more long term relief through them rather then gp or a neuro. I encourage you to state to your doc what you have here. Hang in there.
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Old 07-06-2008, 10:18 AM #4
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Hi, TOT! Welcome to NeuroTalk!

You have come to the right place, my friend, many great people here know just how you feel. Ali is another young teen with RSD, she's a great kid and will probably have some tips for you. I hope you'll get some relief soon.
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Old 07-06-2008, 01:04 PM #5
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omg yes! im almost at 2 years also and ive been to the pain management docter and theyve done nothing but to tell me blah blah follow up with other docter and well see you back in a few month like okay what part of this is managing my pain like wtf??! it bugs me if i was 36 instead or 16 i would get medicean to make me feel better .. but casue im a kid i should be in pain??!
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Old 07-06-2008, 03:47 PM #6
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Quote:
Originally Posted by tiredofthisoxoxozxo View Post
ive had it for 2 years and i dont understand why just becasue im 16 i shouldnt be allowed to have pain killers i mean im in pain im not going to get addicted and im not trying to get high i just dont want to be in pain anymore even when i have my appendix taken out i had 12 pill to take 1-2 every 4 hours it was like not even 2 days worth and in the past 2 years they were the only 2 days i wasnt in pain .. i dont understand why i should be in pain i need something i cant keep living like this if i was 18 i would get them but casue i go to the childerns docters i cant take anything to releve my pain has anyone gone through this or is there anyone eles who is in pediatrics who actually recives pain medicean .. and i even go the the pain management docter!! its redicouls
I got RSD when I was 15, I will be 23 this month, and I was given pain killers. I'm not sure why you are being told you can't have any. Maybe things have changed since I was under 18? I did not goto a childrens doctor. Maybe that is the key? I was given darvocet. It is a non-narcotic pain killer. The doctor gave the pills to my mom, and told her she was to hide them and only give them to me at her discretion. He also said that no matter what I would get addicted to the, but that we would deal with that when the time came for me to be off of them. I'm not sure that any of this will be helpful to you, but this is just what I went through. Since then I have seen a few other doctors, and they all have given me pain killers.
On the flip side I am now allergic to all pain meds, with the exception of morphine. I don't know if starting them so young caused that, or just bad luck.
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Old 07-06-2008, 08:09 PM #7
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Hi, Have The Doctor's You Have Seen Specialize In Rsd? Also, Did You Have Your Surgery Before You Were Diagnosed With Rsd? You Should Definatly Be On Pain Med. I've Seen 5 Doctors Until I Found One That I Really Like. Don't Give Up. My Heart Goes Out To You.
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Old 07-08-2008, 02:10 PM #8
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Quote:
Originally Posted by tiredofthisoxoxozxo View Post
ive had it for 2 years and i dont understand why just becasue im 16 i shouldnt be allowed to have pain killers i mean im in pain im not going to get addicted and im not trying to get high i just dont want to be in pain anymore even when i have my appendix taken out i had 12 pill to take 1-2 every 4 hours it was like not even 2 days worth and in the past 2 years they were the only 2 days i wasnt in pain .. i dont understand why i should be in pain i need something i cant keep living like this if i was 18 i would get them but casue i go to the childerns docters i cant take anything to releve my pain has anyone gone through this or is there anyone eles who is in pediatrics who actually recives pain medicean .. and i even go the the pain management docter!! its redicouls
My doctors finally gave in and gave mme pain medicine, i was sixteen at the time, but now im seventten and they have stopped caue rnd can be fixed (which im going to god knows when) Most doctors wont but keep asking!! it never hurts to ask
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