Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-30-2009, 07:05 AM #1
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Default

I can't give much insight as I have so many different things going however making sure you have a DR who knows about RSD is the best idea. I have a SCS, just got it in NOV 2008, it helps the RSD but not good on the bones, for me, do some research on the SCS to make sure the DR's know that you know about it. I got lucky and got a good pain center and it was in a team effort between an ortho and the neurologist at my pain center.
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Old 03-30-2009, 09:24 AM #2
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Default Hi,

I have had around 14 surgeries since RSD and I got blocks for most all of them and had no spread. Where I didn't have the blocks I had spread.

I think that the Anesteolgist are more up on RSD nowadays then they use to be and also some are more up on it then Drs.

What I did was tell the Surgeon I had RSD and asked him to do blocks and then when I got in the room to be prepared for surgery, I told the Anesteogist and they have all done blocks with no hesitation.

I know there are new things out there as others have said and I think if you make sure your Dr. and Anesteolgist is aware of the RSD then you should be ok with surgery.

I realize a lot of people say, no surgery. My feeling is there comes a time when you have no choice on some issues.

Ada
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Old 03-30-2009, 03:45 PM #3
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Default Hi Debbie

Sorry I missed this post. It has been a while since we have talk. Would you please update me and let me know how you are doing?I am so sorry to hear of your continue struggle with this. Im thinking about you, I'll call soon.
Gentle Hugs
Di
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