[susieorr444]

My hand therapist, a close friend with RSD, and I are wanting to start a local RSD support group in our city. My therapist has several RSD clients and has contacted other therapists who have patients. Have any of you started a group or know of someone to contact to help? When we moved here I met my friend at church for the first time. Her first comment was "You have RSD!" I had just been diagnosed. She has been so much help. She routed me to my awesome therapist and has been a great sounding board and support. Our husbands work together at our church. Thanks for any suggestions you might have. (When we do start a group guess what web site will be on our list???) Susie

[Curious]

susie,

what about asking your dr to hold an informal meeting at his/her office on a saturday? just a coffee tea type of thing. see how much interest just from that office.

then contact any of your therapists "friends" to do the same thing.

all it takes is a few to start.

i'm sure more will chime in here. there maybe members here who live near you.

[susieorr444]

Originally Posted by Curious

susie,

what about asking your dr to hold an informal meeting at his/her office on a saturday? just a coffee tea type of thing. see how much interest just from that office.

then contact any of your therapists "friends" to do the same thing.

all it takes is a few to start.

i'm sure more will chime in here. there maybe members here who live near you.

Good idea, I live in the the Wichita Falls area.

[Curious]

my daughter..lil'monkey..her good friend is there for the summer visiting her dad. lil'monkey is planning a weekend there.

i'm in the dfw area.

[Jomar]

Maybe make up some flyers or signs and ask if you can place them in Drs offices?? add a sign up sheet for those interested...

RSD/CRPS ??

We'd like to start a support group -
if interested please call or email {phone number & email address}

{make a free email account for this in case of spam or weirdos}
{I wouldn't use your home phone number either - maybe get a tracfone something for this part and let messages go to voice mail??}

[daniella]

Hi. I too have been trying to start a group not only for rsd but chronic pain. The one rsd support group in my area has been canceled for like 4 months cause the leader got really ill with her rsd. I made a post on craigslist under groups with little replies. I am also going to call a local hospital here that offers many groups but nothing for this type of thing. I too would ask your therapist if they have any suggestions. Where do you live if I may ask?