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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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I`m a seventeen year old girl, who was diagnosed with RND about three months ago. I have it severly in my stomach, nasea and not as severly in my wrist knees and ankles. I will be going into Dr.Sherrys program soon, I will be admitted for three to eight weeks for intense physical therapy. If anybody knows anything about this, or even something encouraging please reply!
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#2 | ||
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Member
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Quote:
Hope that helps Debbie |
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#3 | ||
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Magnate
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Hi. I am sorry you are struggling. I have read other posts about this program so maybe if you do a search and then email those people it can help you feel more ready. I did a maybe similar program at Cleveland Clinic well sort of. It was 8 hours a day 5 days a week with pt,group therapy etc. I lasted only 4 days and then was sent to get a catheter which I didn't do. I am thinking if I get the scs to do it again though and try to make it through the 3-6 weeks. It did help me the few days I was there in many ways. After that I leanred how to push myself through my pain which is not for everyone but in my case a must. Many coping mechanisms with the fear,anxiety,depression. Hang in there and keep us updated. Is this Sherry program only for young people meaning under18
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#4 | |||
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Magnate
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Hey,
I'm sorry to hear that you also suffer from RND - I have RND/RSD in my left leg and right arm, I developed it when I was 12 years old (i'm now 13) I've never been on Dr Sherry's program, however I am starting a similar program on Monday - I really hope that the program helps you as i've spoken to several people who have got better on Dr Sherry's program. On Youtube theres a video of a girl named Alessa who went on Dr Sherry's program and her RND went into remission. Sorry that I can't help you that much but I really wish you the very best of luck and I hope that u will keep us all updated Take care Alison
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To the World you may be one person, but to one person, you may be the World. |
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#5 | ||
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Junior Member
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goood luck hope it works for you
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"Thanks for this!" says: | ali12 (07-04-2008) |
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#6 | |||
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Magnate
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Thanks - I really hope the PT program helps for you too. I'll keep you in my thoughts.
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To the World you may be one person, but to one person, you may be the World. |
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#7 | ||
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Junior Member
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Thanks for all the replys, yeah i`m extremly nervous to start the program, but what has been hard has the program never gave me an actual date when im going to start the program. I`ve been waiting and hoping to get in before school! So i`ve been waiting and waiting, as my stomach gets worse and worse. I`ve lost about ten pounds in two weeks since eating has been getting hard and the pain has gotten worse and worse sso i dunno! If anyone has any suggestions please reply! =)
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