Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-07-2008, 11:37 PM #11
loretta loretta is offline
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Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Tony T. View Post
After being diagnosed with RSD in 1988, yes I said 1988, the mode of treatment included surgical sympathectomies. My result was more intense pain & the procedure being irreversible. If I had another chance, I'd never have it done.
Residing here in Iowa, I have trouble enough just finding doctors willing to prescribe pain meds. If your doctor wants you to have this done, my suggestion would be too run. Good luck to you...............................

Tony T.
Hi Tony T and Welcome. So very sorry you the symp. surgery. That is what is so scary about RSD. It can be made worse by so many things. I'm scared to death to go to the dentist. I bet it's difficult to get meds in Iowa. The FDA monitors the Docs so closely, of course, so drugs are not misused. But there are pain clinics and Drs. that know how to manage RSD. My Dr. is a Pyschiatrist, Neurologist, and has a degree in Pharmacology. He manages my pain and other symptons of RSD. To reduce pain, their are other drugs that work effectively on nerve pain. Anti-seizure and anti-depressants. So I take both of these meds and blood pressure, anti-anxiety, sleeping pills, and Vicodin. Because of changing from Neurotin to Lyrica, a newer anti-seizure, I was able to reduce the narcotics. I see my Dr. once a month for first 4 years and now every other month. This disorder turns your world upside down, especially if you were active. I've had it 12 years and now have full-body. Mine came the day after surgery and wasn't diagnosed for correctly for about 7 years. I'd like to encourage you to join this forum, it really is full of caring, educated, compassionate men and women and young adults like Ali. Hope the best for you. I'm personally glad I found this group and have 'held on' because of encouragment of my friends, family, this group of fellow RSD'ers. Hoping the Best for you, Loretta Jewell
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