All I can say is thank heavens for ice. I am one of the few out there that can't stand heat in any way. If I go outside during the summer, I have to come in and get out the ice packs, sit in front of the fans blowing the cold air from the airconditioner on me. I get so red from any heat. My arms look like they have been burnt, and my face and neck are so red, and I sweat so bad, that I have had strangers come up to me and ask if they needed to call 911. I love temps about 45 to 55. My poor family suffers so much. I would love to be able to enjoy the summer. But come fall and winter, I'm in heaven.

Hugs
Mary

Use whatever helps. Just keep looking for things. If something hurts or has no effect discontinue it at the earliest opportunity. You'll end up on lots of medication and stuff so you don't want anything that will confuse the issue.

I find ghinko biloba is one of the best things for this. But I've tried almost everything and discarded them. Keep in mind that everything keeps changing so you'll always be aiming for a moving target. One of the worst things for me is the preservative used in red meats; sidium nitrate. But sometimes it doesn't bother me for months on end. Watch out for high vitamin doses. Some will cause headaches or something.

Talk to your doctor. They can do you a lot of good.

Ice will put my pain out like magic but when it warms up I get all the pain I missed and twice as much besides. Warm water is great and will always relieve it in a short while unless I've used it more than about 45 minutes that day. Then it just makes it ache.

I think most people just have to learn tricks for distracting themselves from the pain and find the right combination of drugs to relieve their specific symptoms. It takes time.

There's a good chance of beating this thing the first couple years and effort might be well spent at that.

helllo..

This link below explains alot about cold and hot RSD, though they are both just diffrent ends of the wonky thermostat.. but please beware
the ice will damage your nerves further no matter how good it feels at the time..

http://www.rsdrx.com/rsdpuz4.0/puz_102.htm

be well,

Sandel

This one has pretty graphic pictures of what ice exposure can look like over time, RSD skin breaks down quickly.. don't you notice the shine on your skin? thats from the skin thinning.. all kinds of changes are taking place at the molecular level... The ice is like acid on water.

http://rsdrx.com/rsdphoto.htm

Hi

Thanks everyone for your replies. Keep them coming. I am trying to figure out what works for me and what doesn't.
There are so many questions that I have but feel stupid asking?

I wish there was one easy solution to this. I have other health problems as well.

Summer