Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-16-2008, 11:30 PM #1
Imahotep Imahotep is offline
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I primarily had night sweats and sleeping difficulties for about ten days. I had been on only a low dosage of methadone though.
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Old 07-17-2008, 12:41 AM #2
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Default Hi,

I was on Methadone for over 5 years. I went up on it about 2 months ago and started having other problems so I decided to go off of it completely. My Dr. thought it was important for me to go off of it due to the other problems so he told me how to ween down on it but I just decided to quit it and did with no problems. Some people can't go off of them with no side effects though. Each person is different.

I do take the Methadone when I am having a lot of pain but not on a regular bases anymore. I'm sleeping better and not as much sweating as when I was on it.

I think you just have to listen to your body as you do it and take it one day at a time. Good luck.

Ada
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Old 07-18-2008, 12:19 AM #3
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Thanks for sharing your experiences.

My game plan right now is to do as the Pain Med nurse said. She is an FNP, but probably follows the doctor's orders on it.

I plan on taking my last Avinza at midnight Saturday night. At around 30-34 hours my withdrawals normally hit. So around 6am Monday morning life will be unpleasant. I planned on taking the Librium and Hytrin at that time. I took Librium without consequences many years ago. I have never taken Hytrin.

I have a history of "just quitting" meds without causing any severe problems, but Morphine is a lot different --- I am hoping by taking the meds I will not hit the wall, but just be miserable a few days. So far, I have taken Vioxx, Celebrex, Paxil and others for long periods of time. Guess I am just lucky.

One of my worries is my breathing. I am on a Ventilator for sleeping, or even taking naps.
My SV unit has a patient disconnect alarm, but I turned it off because I haven't needed it.
Guess I will turn it back on. Heck, it has 6 different alarms, and my oxygen concentrator has a couple, so if I accidentally knock the mask off, I will hear at least one alarm.

My Service/Medic Alert Dog is being trained as a hearing dog for me ... too many years flying KC-135s in the Air Force. I am still fighting the VA for hearing aids. I got SSDI 4 months from when I dropped my package off (that includes receiving the first check) but the Veteran's Adversary is tough. Luckily my Service Dog already cues me when someone is at the door or my wife is coming home. I am not deaf, just have huge hearing losses in 2000 hz up.

Thanks again for how you handled it. Quitting cold turkey and being treated like that is against the law in Calif. A doctor HAS to refer you out here. They can lose their license if they don't. What a crappy doctor to just dump you. I was told to go to the ER if I needed morphine (mostly when I was back visiting family in the midwest). Scary.
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