i use the LDN for treating my rrms. and as ive said on another thread i cant say enough good things about what its done for me. as i undertand it naltrexone was originally developed to help keep heroin addicts clean. then they noticed it helped alcohalics sober too. somehow they got to looking at autoimmune things.(but i digress.......)the thing im getting at is the dose for heroin and alcohalism was about 50mg.......LDN is roughly 3-4.5mg. they had to go up to 300mg daily to see significant liver risk.
the LDN we all use is an off lable script, but so what? writing an off lable script is perfectly legal, not to mention a common practice. neurontin was originally developed as an anticonvulcive for epilepsy.http://www.rxlist.com/cgi/generic/gabapent_ids.htm
now its a popular MS drug.its also used as an antispasmatic for parkinsons. immuran is used in RA and as an immune rsponse suppressant for kidney transplant patients.......... also a popular choice for MS
http://www.medicinenet.com/azathioprine/article.htm

they should at least let you try it.

I'm going to sound like a dope, but what is rrms? Is this a form of MS?

Hi Millerprof. Yes, RRMS stands for Relapsing-Remitting Multiple Sclerosis.

I began LDN Aug. 4th of this year. My daily dosage is 4.5 mg.

I'm kind of sluggish in the mornings and stiff, so I may decide to cut back to 3.0 mg.

I'm interested to know how it helps people with other diseases. Thanks for this thread.

Hi, I've been a Dr. Schwartzman patient since 2008 when I had my first Transverse Myelitis onset. Since then I've gotten MS and CRPS (stage IV) (diagnosed & treated rigorously by Dr. S... until recently as he seems to be heading toward semi-retirement).

I just began seeing Dr. Datta in Hackensack, New Jersey, an amazing, brilliant anesethesiologist and human being, who is working on what seems to be a trial of Naltrexone and Ketamine Troches (lozenges 3x/day). I'll also be getting my IV ketamine boosters with him from now on, and he'll be adding IV lidocaine, as well as increasing the dosage of Ketamine.

I hadn't heard about the Naltrexone for MS, but I'm a lucky multi-neuro-ite if this CRPS treatment will help both.

I'll keep you posted.

But if you want to get in touch, feel free to email me at ** I don't check my email often anymore - low-vision, etc; but if you make the subject clear hopefully I'll get back to you quickly.

Dr. Datta seems very excited about this new treatment regimen and states that he's seen patients (not stage IV,....) have complete remission or reduction of symptoms, though I'm not sure how long it takes. I think I recall him saying about a year, but my memory is unreliable.

Best to all.

Your neuro sister,
Melanie

I have a bottle of 3mg pills...just been afraid to use it for some reason ...I will start it next week. I am also trying Valium instead of Xanax in hope that it will help with my muscle spasms

My daughter has used this for several months for RSD pain and I do think it minimized lenght of flairs. We got it from Dr Sajben at painsandiego dot com

She has just updated her website this week to include a story of a woman with MS and RSD.

Hi, my name is Danielle. I haven't formally been diagnosed with CRPS yet but we share a doctor. I have been seeing Dr. Datta for almost 3 years. At my last visit he mentioned he had just started treating people with it. I am so desperate for pain relief. I am going to try the low dose naltrexone ASAP.

I am on LDN - now 10mg per day. I think it may be helping some with the pain and inflammation. Before I was on 15mg per day.