Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-11-2008, 09:04 AM #1
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Hi Desi,
Yes, you are right, Naltrexone is usually used for alcohol or drug dependence, but this is in high doses. In very small doses it seems to help with these other disorders, such as autoimmune. Where I could see it not working for RSD is for those who do take opiods--perhaps it might render them ineffective for the person, but I'm not sure it would at such a small dose. It would definately be considered "off-label" or experimental for RSD, but since Naltrexone is approved by the FDA, a doctor could apparently use their discretion. It does sound like there is a lot of controversy over its use. If you go to http://www.lowdosenaltrexone.org you can also read more about it.
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Old 10-07-2008, 10:23 PM #2
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i use the LDN for treating my rrms. and as ive said on another thread i cant say enough good things about what its done for me. as i undertand it naltrexone was originally developed to help keep heroin addicts clean. then they noticed it helped alcohalics sober too. somehow they got to looking at autoimmune things.(but i digress.......)the thing im getting at is the dose for heroin and alcohalism was about 50mg.......LDN is roughly 3-4.5mg. they had to go up to 300mg daily to see significant liver risk.
the LDN we all use is an off lable script, but so what? writing an off lable script is perfectly legal, not to mention a common practice. neurontin was originally developed as an anticonvulcive for epilepsy.http://www.rxlist.com/cgi/generic/gabapent_ids.htm
now its a popular MS drug.its also used as an antispasmatic for parkinsons. immuran is used in RA and as an immune rsponse suppressant for kidney transplant patients.......... also a popular choice for MS
http://www.medicinenet.com/azathioprine/article.htm

they should at least let you try it.
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Old 10-07-2008, 10:37 PM #3
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I'm going to sound like a dope, but what is rrms? Is this a form of MS?

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Originally Posted by FluteMaker View Post
i use the LDN for treating my rrms. and as ive said on another thread i cant say enough good things about what its done for me. as i undertand it naltrexone was originally developed to help keep heroin addicts clean. then they noticed it helped alcohalics sober too. somehow they got to looking at autoimmune things.(but i digress.......)the thing im getting at is the dose for heroin and alcohalism was about 50mg.......LDN is roughly 3-4.5mg. they had to go up to 300mg daily to see significant liver risk.
the LDN we all use is an off lable script, but so what? writing an off lable script is perfectly legal, not to mention a common practice. neurontin was originally developed as an anticonvulcive for epilepsy.http://www.rxlist.com/cgi/generic/gabapent_ids.htm
now its a popular MS drug.its also used as an antispasmatic for parkinsons. immuran is used in RA and as an immune rsponse suppressant for kidney transplant patients.......... also a popular choice for MS
http://www.medicinenet.com/azathioprine/article.htm

they should at least let you try it.
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Old 10-08-2008, 12:50 AM #4
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Hi Millerprof. Yes, RRMS stands for Relapsing-Remitting Multiple Sclerosis.

I began LDN Aug. 4th of this year. My daily dosage is 4.5 mg.

I'm kind of sluggish in the mornings and stiff, so I may decide to cut back to 3.0 mg.

I'm interested to know how it helps people with other diseases. Thanks for this thread.
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Old 10-05-2012, 05:13 PM #5
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I have a bottle of 3mg pills...just been afraid to use it for some reason ...I will start it next week. I am also trying Valium instead of Xanax in hope that it will help with my muscle spasms
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Old 10-10-2012, 05:43 AM #6
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My daughter has used this for several months for RSD pain and I do think it minimized lenght of flairs. We got it from Dr Sajben at painsandiego dot com

She has just updated her website this week to include a story of a woman with MS and RSD.
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Old 10-13-2012, 09:18 PM #7
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I am on LDN - now 10mg per day. I think it may be helping some with the pain and inflammation. Before I was on 15mg per day.
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