I happened upon this page last night and wanted to thank everyone for thier kind words about my father. I'm glad that he was able to help so many of you, he told me that if he manged to help just one person while he was here on earth then he earned his way into heaven. We still miss dearly and always will, once again "thank you".
Krista

Never knew Vic as I am relatively new to this forum.

But what an impact he had. That is so very obvious.

A good part of his "legacy".........

Rest in peace.

Krista,

Your father made a huge impact on my life!!!

It was your father's research and what did or did not work for him that I would print out and take to my own doctors.

I think of your father daily as I still can not bring myself to delete his email address from my contacts list... or even delete his phone number from my cell phone.

Even though your father was suffering with his own pain while battling this monster of RSD.... he was often a lifeline and I'm sure saved many lives. I know for certain he saved mine.... more than once.

If that counts for anything... You certainly can believe that your father did earn is his way into heaven.

Thank you Krista for sharing your father with us... he was truly a very kind, caring, loving man who set his heart on finding pain relief for all of us battling with RSD.


Abbie

Vic was important to me as well and I still think of him from time to time. May he rest in peace.

I still think of him often. Talked to him on the phone many times. The last time we talked he called me at 11:30 at night and we chatted for hours. He helped me through a lot of hard times.

He was a such a good guy.

Ada

I had a hard time with losing you bro. I miss all the long phone conversations, and emails, and great advice. I think about you often, and will forever remember you, and am looking forward to the day we can finally meet up again.

To all the NT family.....I couldnt bring myself to post a comment. I know you all knew he was a special person and cared sooo much for us. The very night he left us.....we spent several hours on the phone. When I got up the next morning he had left me an email to call the police, and to alert them. He said his final goodbyes in the email.

RSD is a terrible terrible thing............

Sorry I didnt comment a long time ago. I just couldnt bring myself to this post. It was even hard to comment tonight. Completely lost it before I got to the bottom of the page.

It was good to see all the people you dont see anymore.

Allen,

You should know this about your good friend. Even though he passed on years before I had even heard of RSD, VicC is one of the reasons I don't have RSD pain anymore. His research on the physical elements of RSD coincides exactly with what I had discovered myself, and he gave me great peace to know that someone with his obvious drive and intelligence and compassion had already connected many of the same dots.

I was extremely blessed to have caught RSD early. Treating it as an inflammatory condition perpetuated and compounded by excess free radicals is what allowed me to send the pain back to the nothingness it came from.

The big big issue here is that many people (as VicC knew and was himself) in this community are in later stages of progression, and like everything in existence, it takes a much, much longer time to unravel something the longer it exists. HBOT is the only somewhat accessible physical treatment I'm aware of that can provide additional oxygen to the body over the long term and renew the body's natural healing process. Even still, in some cases, the shock of additional oxygen could very well result in INCREASED symptoms over the short term. (Disclaimer - I have no familiarity with actual operators and a very basic understanding of the recommended procedures of HBOT itself. I would anticipate it's quite a minefield to get the right kind of personalized treatment.)

The NON-physical "treatment" I found that ANYONE can do WITHOUT the potential for negative side effects is meditation, where focused breathing using imagery of healing white light is breathed down through the crown all the way down to the bottom of the spinal cord, then breathed out to effected areas and extremities. Science on a quantum level is finally starting to show that our THOUGHTS and EMOTIONS create our physical reality, so it may be worth a shot... The worst that could happen from this, is nothing.

A very high percentage of doctors will say that what I just described is absolutely preposterous, and that physical drugs, counseling, PT, and further invasive procedures are the only options we have. But, that's how far behind we are.

Big, big hug for you Allen. I really miss him too. I never had the chance to talk to him on the phone, but had many great emails back and forth with Vic.

I often wonder what has become of the people who used to post at the old site, and long ago on here too... Sure hope they are doing ok.

Spot on vision I completely agree. Meditation is the thing I was most skeptical about, but the thing that has given me the most relief....that, and life itself. There's nothing worse for your mind and body than low activity, low stimulus and low self esteem. Sometimes we can't do much about the first, but the others are always available for change!

Meds and physio have done little for me, my body doesn't like a lot of meds. But general activity where possible, a plan of any kind and meditation have done far more. Thank goodness I didn't bail on the first day of that Mindfulness course!

Good vibes to all

Bram.