I know its a little late but I just read this post for the first time. I sent in my story. I hope it helps. I pretty much begged for them to do a story on RSD pointing out that RSD effects more people than MS but no one has ever heard of RSD. I will let you know if I hear anything.
have a good day,
Denny

I am also a bit late but I just dropped Dr. Phil a note as well. GO TEAM!

any new news??

Does anyone have easy access to the address? I would like to send a letter as a child of a parent with RSD. It is a different perspective.

http://www.drphil.com/contact_main/

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Horray! A show on Dr. Phil for real? The producers should E-Mail every Dr. in the world to watch because I am tired of the weird look I get on the face of a Dr. when I tell them what I have. Then they try to convince me they have treated someone with this. Hey, I might be "Goofy" but I am not dumb! The problem is even a nurse that was inserting the IV for my 14th nerve block had no idea of what RSD was. She said she never even heard of it! People desperately need to be educated in this disease, understand it, have at least some idea of how to treat it and not be afraid to PRESCRIBE NARCOTICS IF NEEDED! I am sick of being told how addictive they are! Hey people they don`t make me HIGH! They help my PAIN! IDIOTS! OOPS, I think I may be a touch _itchy today. Sorry! I even got off track here. What I really wanted to say is PLEASE KEEP US POSTED on the show!
Love to you for caring enough to at least try to get someone who is high profile to get people`s attention to this disease. I am sure everyone here is very grateful!
Franny

Franny, You are not being an idiot. I had a horrible experience in an ER in California because a nurse knew nothing about RSD. I had been to the ER the day before and they out an IV in my left arm because my RSD is in my right arm. This nurse started to put the IV the next day in my right arm. I told him he couldnt do that & he asked me why. I told him. I already told you I jhave RSD in my right side. He was completley clueless. I had a very severe case of the flu. It had taken two bags of fluid the night before & four more that day to start to rehydrate me. Plus they were giving me some of my meds so I wouldnt go into withdrawl. The good thing is that because of my horrible mistreatment the hospital is going to do RSD training. So sometimes good things come when we stand up & get mad.
hugs, Denny

I have been fortunate since my diagnosis 2 years ago to have a great team of pain doctors right near my home at the Carolina Pain Institute.
I've been following this post on the Dr.Phil show, it's a great idea and I hope that it's a success and they dedicate a whole show to it.
I totally understand everyone's frustration with RSD being the unknown disease that it is, so I wanted to share a new resource with the group.
Pain Pathways magazine is published by my doctors office, it's an international magazine so it will definitely get the exposure we all are looking for. It just started this year and covers all kinds of chronic pain. There is always an article or sharing from someone with RSD in it. Next issue they are doing a feature on RSD/CRPS, I can't wait to see it. It's nice to have a hard copy of information to share with family and other docrors who haven't yet heard of RSD.
Dr. Oz from Oprah was in the summer issue, so who knows maybe even Oprah will take notice
They are very open to suggestions on articles and information. I suggested an article on pet therapy since my dog has helped so much with my pain management. This issue there is an article and picture of me and "Tweek"
The total bonus is that all proceeds go to research and education...so it's a win/win situation.
Hope this helps someone else as much as it has helped me
Jeanne

Hi, I just emailed Dr Phil and the Doctors show...let you know if I hear anything...GOOD IDEA !!!!

im glad that some one has gotten the attention out there for our cause !!!!

carrie