Welcome to the group.

With the all over pain you are experienceing, that could be Fibromyalgia. It comes with RSD often. You might want to see a Rheumetolgist to see if that is what you are dealing with. Eye problems often comes with Fibro. I deal with seeing close up or far off. A friend of mine who has Fibro went to her eye Dr. and he told he she has what they call Fibro eyes. That's one reason I hadn't bothered going. I need glasses to read close up and I can't read signs until I am right up on them no matter how big.

As far as the fatigue, that could be Cronic Fatigue Syndrome which comes with Fibro most often also. I deal with that also. I have gotten better though. You have to sleep off the symptoms. It's not a short process either. You kind of go into remission from the CFS like other illnesses.

The shaky and jerky movements come with RSD a lot of times. Bill use to say I jerked all night in my sleep and I drop everything. Drives me nuts. It's like I am throwing things. They don't just drop at my feet.

Headaches can also come with Fibro due to tenderpoints. With Fibro there is 18 tenderpoints that are very sore at the touch. Again a Rheme can diagnose that and CFS if that is what you are dealing with.

I'm sorry to hear that you are going through this. It's like a rollercoaster ride that never ends.

Ada

I agree totally with Ada. I just returned a book to the library in which it states: on average only 5% of the entire population that has been diagnosed with fibromyalgia will ever experence RSD; however, 100% of those with RSD will develop fibromyalgia.

I was first told this last summer when I visited a neurosurgeon friend of mine who had just written a book on the mind, body, brain connection. He focused mostly on chronic pain and both medical and alternative ways to heal. Most of the info. I received from him can be picked up by reading quality websites on the Internet regarding fibromyalgia. I also learned a lot from 3-4 good books from the library. I can't think of the name of this last one I just returned, but it was good. From your desription you sound hit on most problems this author addressed regarding those "unfortunate patients" who suffer from RSD and then (or prior) fibromyalgia.

I hope this gives you a direction to investigate further with your doctors and in your research. Please remember to report all new or different symptoms to your doctors, it is so important to keep them informed.