Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-01-2008, 10:09 PM #4
Alleygator Alleygator is offline
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Join Date: Jul 2008
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Alleygator Alleygator is offline
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Join Date: Jul 2008
Posts: 4
15 yr Member
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Thank you for your replies. I will definately look into the ECT as well.

She had been seeing a psychiatrist and a therapist while she was being treated at her previous pain specialist. Oddly enough they both thought that she was suffering with normal amounts of depression given her condition if not better than expected. She has had a great attitude towards everything, even on her bad days. When I talk to her about what she tried to do, she says that it is literally the pain that drove her to it, that it is so intense on her really bad days that she can't handle it. On her normal days she says she can stick it out. I can empathize with her, but I truly can not imagine that amount of pain.


And we are in Scottsdale Arizona. When I was calling around to find her a new doc, 19 of the 20 of them said that they would not see her because of the Methadone (number 20 we get to see mid August). I guess some idiot doctor told one of his patients to take like a 700mg dose and it killed him, now everyone who benefited from it that is not a heroin addict is getting punished for it. One doctor that we had a consultation with went as far as to tell us that it is too bad she doesn't have cancer, because then there would be an end in sight and people would give you enough medication to make you comfortable.

BCBS has approved the SCS implant trial and they cover 80% of the cost, so that is good. I just can't get any of the doctors to give us a ball park figure.

I have tried to get her to get on these forums, so she has someone else to talk to other than me, but her pain is in here whole upper left quadrant and it takes everything she has just to type a few words, so she isn't on her computer much.
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