FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
08-14-2008, 12:34 AM | #1 | ||
|
|||
New Member
|
hi Im Janice ,i here everyone winces have had rsds since 1992 , heres the wincing part i have had a below knee amputation and thanks to fenzian treatment my scars healing well, and the rsds is not showing its ugly head again. Has anyone tried fenzian i hear theres a doc that practices it I have been lucky my surgeon recommended fenzian but it takes quite a while for the body to reajust. Deppression b4 and at times now are my worst enemy .Learning to walk on a new leg is very tough as the gait pattern is not great Im 5 months down track now had my leg for 6 weeks. It was my decision i knew the odds and had my fingers crossed with hope
|
||
Reply With Quote |
08-14-2008, 11:27 AM | #2 | |||
|
||||
Member
|
Did I understand correctly, you had your lower leg removed because of RSD??? If I misunderstood, I apologize ahead of time. And usually I am not so blatantly rude *LOL*
Either way, good luck. I did go read about Fenzian & it even states it is used for RSD & even Fibromyalgia, both of which I have. I imagine it is expensive huh? And probably not something that insurance pays for? And no I am not WC. I only have Medicare & MediCal so am doubtful either one would pay for one of those. Damn it............. DebbyV |
|||
Reply With Quote |
08-15-2008, 04:58 AM | #3 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
08-15-2008, 05:10 AM | #4 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
08-17-2008, 03:07 PM | #5 | |||
|
||||
Member
|
I dont' get on the computer too much anymore. The 3 little boys in the picture are my 3 grandsons who are now age 7, 6 & 2.5 yrs old. I really need to update that picutre *LOL*
I just had not heard of anyone who opted for amputation for RSD. I had read about it at web sites on RSD, but that usually it doesn't work often for pain control. I am really glad that it did work for you tho. Good luck. Debby |
|||
Reply With Quote |
08-17-2008, 08:00 PM | #6 | |||
|
||||
Member
|
Hi there and welcome !
I am so sorry to hear that you had to choose that option , but I have the utmost respect for you ! It must of been a hard decision to make. But you sound like a very strong person and I am sure that you will get thru all of this. Just keep in mind, the harder you work the bigger the pay off ! I was diagnosed with RSD last year , I also have TOS. The RSD has been terrible. It started in my right shoulder , the shoulder is frozen at the moment and I now believe it has spread to my right foot. Because all of a sudden in the last 3 weeks I have developed excruciating pain and I have seen a podiatrist and I have Planter faciitis, Tarsal Tunnel syndrome and the right foot is turning inward ?! So I am sure I know how painful it was. I wish you the best and hang in there ! Dolfinz |
|||
Reply With Quote |
08-17-2008, 08:38 PM | #7 | |||
|
||||
Member
|
Hi and glad you have joined us. I also have rsd in both feet/legs, and I know what you mean about being able to get around. After almost 5 years in bed or a wheelchair, I was able to get an SCS (spinal cord stimulator) implanted in my spine. It has helped so much. I am going to have the battery moved from my butt to my belly. That will be the end of Sept. My daughter is getting married Sept 25th, and I have to be up and ready to party. for my birthday next month, I want a 3 step mounting block so I can get back on my horses. I think once they move the battery to my belly, I won't be so concerned about falling off and hurting my butt.
I can only think how hard the decision was that you made. it does sound like have are doing great now. It know what you mean about the gait being different. My uncle lost first one leg then the other to being diabetic. That was many years ago tho. If he was still with us, he would be about 94. (it was smoking that got the better of him tho). Hugs Mary
__________________
There is no future, there is no past, we must make each moment last |
|||
Reply With Quote |
08-25-2008, 06:00 PM | #8 | |||
|
||||
Member
|
Mary,
I think I would still be concerned of falling off & having the leads knocked loose or out of place. Hopefully you are a great rider & your horse doesn't shy easily. That is the only time I have ever took a major spill was when my horse shied on me once. After that I was always ready for him to do it. He didn't shy all that easily actually but I was better prepared after that. *LOL* This was when I was kid too, teenager actually. Haven't really ridden since then & am no longer young woman. DebbyV |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Iv-Ig treatment | Myasthenia Gravis | |||
Treatment Choices? | Peripheral Neuropathy | |||
Free Fenzian Treatments offered to RSDS Patients (Irvine) | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
RSD Treatment Questions | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
A promising new treatment | Parkinson's Disease |