Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-01-2006, 01:43 PM #1
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Default Thank You Debby

This was a great posting.

I am guilty of accepting a prescription from the doctor and assuming it is perfectly safe because a "doctor" wrote it. but now as of late I do immediately go home and get on the computer and read about the med as well as talk about it with my pharmacist. I find he has a complete history of all my meds.

I currently take oxycontin and vicodin as a booster for severe pain from the RSD and the neuropathy. But I am always concerned that I will probably have to go to rehab to get off these drugs. I have been on them for over a year. Hopefully though I can get weened off instead.

Thank you again for posting this very informative information. Chin Up!!

Mark
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Old 11-01-2006, 02:18 PM #2
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I don't find myself concerned with having to go to rehab to get off the meds at all. If that's what I have to do, it's what I have to do. At least I know,my family knows, and my doctors all know that the REASON I am dependent on them is because of chronic long term pain and not because of the desire to "get high" on them

On on the 75 (mcg/hr???) fentanyl patch plus take percocet every 8 hrs on top of that for my pain...and it doesn't phase me one bit. I don't LOOK stoned, I don't FEEL stoned...if I were to get pulled over while driving, the cop wouldn't even think about testing me for drugs cuz my eyes arent' glassy or anything. This is a person who doesn't even DRINK ALCOHOL, let alone anything else....so you know my pain is REAL cuz it's "going to the right place" in my brain. And that's a huge difference between those of us with real pain, and those who take it to get high. when you take it for pain, the area o the brain responsible for pain NEEDS IT and uses it. When you take it for recreation that area of the brain DOESN'T need it, so it's purpose is DIFFERENT...and that's why when someone has pain and is on narcotic pain meds, they feel a lot different than someone who ISN'T in pain when they take them.

There is NOTHIGN to be ashamed of, nothign to worry about, when it comes to taking narcotic pain medicatio. You can either suffer day in and day out ofr several YEARS in pain because of the "fear" that it will take "a month or two" to get off the medication....or you can have those several years at least COMFORTABLE, and endure those couple/few months it will take to wean off the meds.

Besides, if you go to a pain mgt doc, they won't PUNISH you...they'll wean you off the meds slowly. They won't tortue you...

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Old 11-01-2006, 03:25 PM #3
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Lisa & Mark,
I too am not concerned for how or even when I go off my pain meds. I am on MS Contin every 8 hrs with Oxycodone for break thru meds & also a smaller dose of more MS Contin if needed. The only people who make any stupid sounds or speak negatively are when I go to the window at the pharmacy I use & the helpers say something rude because of the doses I take. I ignore them cause they are usually quite young & are just plain ignorant. *LOL* They do need educated as to how NOT to react to any meds/dose people take though.

My doctor is a PM Doc & if/when the time comes for me to go off Opiates, well he will wean me slowly. Like Lisa I have never felt 'high' from taking them & I am on a rather high dose of MS Contin at this time. The only thing he wants me to try to wean off at this time, is either Neurontin or Lyrica. I have a tougher time with BTP during the hot months. Now that it is cooling off here in Northern California I am hoping I can reduce one or the other. I haven't had BTP too much lately. I would rather go off Lyrica. I gained 20 lbs in 6 weeks from the start of taking it. Thankfully I have stopped the rapid weight gain. Also Lyrica has made me so sleepy that I can fall asleep at the drop of a hat. My PM Doc has put me on Provigil to help me stay awake during the day. I don't take it every day though. If I didn't fall asleep so easily I would seriously consider trying to go back to work. I worked for over 6 months with MEGA pain & little to no pain contorl at all before going off work for foot surgery & then not being able to ever go back to work. But then every time I think, maybe I could try it, I end up with pain from H--L.

Well Look there???!!! *LOL* I went & went off with blabber fingers *LOL*

Anyway I guess I said what I wanted to say & then some HUH???? *ROFL*

Take care all,
DebbyV
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Old 07-27-2007, 12:13 PM #4
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Bumping this up because I thought that the newer members probably hadn't read this and I thought it was good!
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Old 07-27-2007, 12:32 PM #5
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Kinda old but good info
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Old 07-27-2007, 01:48 PM #6
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This was a good idea,glad you did it. Sue
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Old 07-29-2007, 07:32 AM #7
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Thank you also Ness! Debby, can you have with drawls from coming off Lyrica? Neurontin?? If so, I didn't know that!! TIA Love, Desi
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Old 07-29-2007, 10:27 AM #8
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Default Hi all,

Mark, I started years ago reading up on the side effects of meds. Besides getting on line, Reader's digest has a book that names them all and even goes into more detail about the side effects. Mine is an old copy about 5 years old but I still use that thing often.

I watched Bill's meds and he was on one that really did a job on him. The Drs. put him on it 3 times and he'd have such bad side effects. I sometimes wonder why they hand out so many old meds instead of trying some of the new ones. Although they too have side effects. I couldn't take Oxycontin nor use the moraphine patch nor a lot of them.

I have been on Methadone for over 4 years and my dosage is low enough that I don't see any side effects.

I agree though, no one should worry about getting hooked on meds if they are in the pain RSD people go through. Just mainly worry about the side effects. There's too many out there to stay on one you can't handle.

As far as natural remedies. I've had Drs. to write down names of them so I know some do believe in them and as someone else said, Debby I believe, a lot of Naturalist don't believe in prescription meds that to me is just as bad. I have seen people go off of heart meds and cancer meds and other things they really need because they think all natural is better. Not in all cases I don't think.

Ada
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