Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-29-2008, 12:24 AM #1
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I've had the aura without headache for about thirty years and RSD only ten.

I get it only about every year on average and it lasts only 15 minutes to half an hour. When I first got RSD the frequency increased dramatically but now I'm getting it less than ever since getting the migraines.

I get a sense of discomfort with them but the real problem is that I usually can't see straight. Anything in my direct field of vision appears kalaediscopic.

Caffeine tends to bring it on more than anything else but there are other triggers for me.
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Old 08-29-2008, 06:46 AM #2
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Default I Knew I Wasn't Going Crazy!!!

And thanks everyone for confirming it for me!

All of you are right that it is a annoying discomfort with all kinds of added issues like nausea, dizziness, etc. I wonder sometimes If maybe I P****d off the Big Guy... or what?????

I try so hard everyday not to feel angry or want to pity myself. I always remember that there is someone out there having a much worse day than me. But I do in fact get angry and upset in spite of how hard I try not too. I guess it is human nature. Well thank you all for the reassurance!

Chin Up! Mark
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Old 08-29-2008, 01:13 PM #3
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This is kind of random, but have you recently obtained a new pair of glasses or a new prescription for you contacts? I started having terrible migraines complete with auras and throwing up soon after I got a new pair of glasses. Turns out the place where they were made put in the wrong focal length! So my glasses were like little migraine machines. So just something to check . . . Also, medications like topamax and neurontin can really help with headache symptoms if they are debilitating. I never have headaches anymore- one of the few perks of topamax!

Lynn
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"Thanks for this!" says:
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Old 08-29-2008, 01:19 PM #4
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ty lynn. this is really important to double check for kids too.

lil'monkey( 14 yr old) thought she just had to get used to her new rx. nope. they had messed up.
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Old 08-29-2008, 02:13 PM #5
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Hi Mark,

I've had occular aura migraines for about 3-4 years now. Scared the bejeebers out of me the first time it happened as I was driving down the interstate at 75mph and all of a sudden couldn't see but half out of one eye..

I've noticed these "migraines" don't always have the accompanying headache with them... the come on very sudden for me with the smells, vision probs, dizziness, nausea, vertigo, etc...

No rhyme or reason but never had them prior to RSD. I do get them frequently with RSD flare-ups but not always.


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