Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-02-2008, 08:52 PM #1
naja210 naja210 is offline
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Originally Posted by Desi View Post
Hi all! Ok, went to my doc.'s today and he said not only do I have RSD I also have something called,Fibromyalgia?? He explained a little of what it is. When he touched me in certain areas, especially my ankles, up on my shoulders, and so forth, I wanted to cry, but didn't. I am still on the same meds. Fentanyl patch, percocett for break through pain, Neurontin(Gabapentin) He upped this to 6oo mg. 3x a day now. I'm also, still on xanax and EffexorXR and amitriptylin. There are times, when I get out of bed and it hurts to even walk! My knees hurt too. This RSD is still kickin' my *** too! LOL Does anyone have a good link to this? Does anyone else have this? thanks and love to all!~Love, Desi
I have been living with fibromyalgia all of my life but only knew the name about 8 years ago. The only things that really help for me are cutting out red meat and eating healthy and walking. Believe me I know the feeling of the pain so bad that you are laying in and need to go to the bathroom so bad but you look at the floor and the thought of the pain of your feet touching the floor makes you want to cry. On good days or not so bad days try to walk, it really does help.
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Desi (09-07-2008)
Old 09-07-2008, 01:33 AM #2
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Hi Naja! I used to walk 2-3 miles every single morning. walking makes this fibro worse! I'm lucky some days getting up and down our stairs. It is so darn painful all over my body. It feels like my feet are crushed by walking!! I went to our local fair and had to leave. All we did is walk, sit down to eat, walk, walk walk!! I was in bed the next day and couldn't do nothing, as I ached all over. I still am in great pain from my RSD, now, this Fibro. It's kicking my big butt all over the place! LOL thanks for posting, Naja. ~Love, Desi
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