Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-05-2006, 11:18 AM #11
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Hey Jewells

Please stay - it's great having people that show that this flipping thing DOES get better!!!!!! its an inspiration to us lot stuck in the stupid RSD = no life + lots of pain thing!!!!

PLLLLEEEAASSSE STTAY!!!!

i do understand it must be really tough when you're doing better and everyone turns round and goes "what do you know... you don't live with it..atm" etc... (but remeber.. chronic pain does turn most of us into horrible whingers and whiners and generally bad tempered!!!)

Rosie xxxx
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Old 11-06-2006, 07:57 PM #12
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julie, julie, julie......i go out of town, and what happens??????
i don't know the story, but i do know that you better not leave this board............. or do i have to come over to your house and drag ya back...............cause i can ya know....lafff
being a PT....you have a wealth of knowledge that you are always willing to share.............
so don't go ANYWHERE ..........
big hugs to ya.......
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Old 11-07-2006, 02:54 AM #13
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Julie,

What is wrong? I'm with Marc..............NO you can't!

Sometimes we all have to take a moment and look at reality here. Unfortunately, we don't have the ability to look at body language or peoples eyes when we talk. Double this with pain, or should I say the agony that most RSD'rs are going through on a day-to-day basis and we have the receipe for hurt feelings all the time.

I so understand how hurtful it can be when threads are not answered. If your message is the last message in a thread and it suddenly becomes non-active. All these things seem like personal hits...but you know what? Within a support group as large as we are, one must not take these actions personal.

I've been on this board long enough and have been witness to so many hurt feelings just on these issues alone. This board is like a well grease machine. Every link works. Everyone represents a link. We all can't be here posting every day. Without each of us, each type of personality, night owls, men and women, our lovely kids, and our beautiful seniors, our newbies and us "oldies"....our spectacular RSD forum wouldn't be the greatest family on earth!!!

It's a big responsibility to be a part of a support group such as ours. It's freaking hard work! I commend everyone for a job well done. It's very difficult to keep up each of our responsibility to act kindly, proof our threads especially looking how each and every member will "receive" (understand) our remarks. This is tough...and this how our feelings get hurt.

Julie, you've always been a very supportive member, straight forward and kind person to me and every individual in my opinion. This is why this comes as a big shocker to me, and by the outcry of disapproval, I see I'm not alone. So I'm asking you to reconsider.

don't just leave us this way...holiday's are here.

With aloha, Dana



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